February 2018 News and PD Support Group Listings

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PD SUPPORT GROUP LISTINGS

CLICK on this colored link:  FEBRUARY 2018 Support Group Listing

Read about guest speakers by clicking on their name ( Green) 

David Russak  PT, DPT, BCIS, CSC- “What is Parkinson’s disease and how do I fight it” (Westlake)   

Nicole Palman Speech Therapist, “The Benefits of Speech Therapy in Parkinson’s.”  (Live Wires DBS Burbank)

 Ronald Ziman, MD , “Ask the Doctor- Q & A ( Burbank, Sherman Oaks and Simi Valley)

Andres Bratt-Leal, Ph.D. “Dopamine Neuron Replacement Therapy for PD” (Santa Barbara)

Lauren Williamson, Community Development Director, Orange County Parkinson’s Foundation. (Claremont)

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JOIN THE DAVIS PHINNEY FOUNDATION and their regional partners for a day of information and inspiration.

FREE educational event in Pasadena, August 2017 

FOR MORE EVENT DETAILS visit dpf.org/vs-los-angeles or                                        call 1-866-358-0285

WHAT The Victory Summit® is a free educational event with information and tools that people with Parkinson’s can use to live well today.

WHEN Friday Aug 10, 2018 10:00 am – 4:00 pm Complimentary lunch served.

WHERE Pasadena Convention Center 300 E Green St Pasadena, CA 9110

PD EDUCATION FROM HOME

MJ Fox Third Thursday webinar  

Thursday, February 15, 2018   TIME:  9 a.m. PT

TOPIC: Depression and Anxiety in Parkinson’s disease

We’re replaying a popular webinar on depression and anxiety. We’ll discuss the Parkinson’s symptoms of depression and anxiety, and how to treat and manage this aspect of life with the disease.

To register, go directly to: www.michaeljfox.org/page.html?hot-topics-webinar-series

PD Expert Briefing

Tuesday, February. 27,  2018   10 to 11 a.m.   

Topic: Parkinson’s Disease Psychosis: Hallucinations, Delusions and Paranoia. 

Host: Christopher G. Goetz, MD                                                     

Copy and paste into your internet server: http://parkinson.org/Living-with-Parkinsons/Resources-and-Support/PD-ExpertBriefings-Webinars Registration at their website.

What if I do not have access to a computer?

Yes, participants without computers may access both live and recorded PD ExpertBriefings. To access a live PD ExpertBriefing, on the day of the live event, dial (888) 272-8710 and input passcode 6323567# when prompted (this phone number is separate from the PDF HelpLine).


LSVT

DATE: Wednesday, February 21,2018                                                                        Time: 11:00 PM – 12 Noon  ( Pacific Standard Time)
TOPIC: How do you maintain the LOUD gains you made in LSVT LOUD treatment and stay motivated once treatment has concluded?

Join LSVT LOUD Faculty to hear valuable insights on post-discharge recommendations following LSVT LOUD, including continued daily homework practice, tune-up sessions and LOUD for LIFE® maintenance groups. Opportunities will be provided for you to ask questions during the webinar through voice and chat options.

In your internet server, copy, paste the following:

https://attendee.gotowebinar.com/register/1338814124016110850  in order to register.

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 PD Telephone at home:  Information unavailable at the present time.

Santa Barbara hosting Shake the Shakes program

UCLA Departments of Neurology and Neurosurgery invite you to a free Seminar on Sunday, February 25th at the Elks Lodge SB.  Registration begins at 9 am. Registration must be done no later than Feb. 21, 2018

 UCLA movement-disorders specialists Nader Pouratian, MD,  PhD, and   Ausaf A. Bari, MD, PhD, will discuss treatment options including medicines, surgery (deep brain stimulation) and noninvasive therapies to cope with tremors. 

The program will also include guest speakers and local movement disorders specialists Erin Presant, DO, and Sarah Kempe-Mehl, MD. 

 Please see the attached flyer below for more information.

  CLICK on the colored link for information:Shake the Shakes program in Santa Barbara.

Finding clinical research, studies and trials

WHERE TO LOCATE CLINICAL TRIALS INFORMATION

For those interested in or considering participating in clinical trials, ClinicalTrials.gov is the definitive resource.  This site, maintained by the Department of Health and Human Services, specifically the National Institutes of Health and the National Library of Medicine, is the comprehensive resource listing all FDA approved clinical trials throughout the world.

 

Just go to the website and type in the disease of interest. Information will be presented as to the nature of the study, where it is being conducted, who is sponsoring it and contact information if interested in possibly participating. For those interested in participating in research, there are many motivators.

For good reason, not everyone wants to participate in research. There are many issues to consider specific to any one person’s decision.

PD Education events from the comfort of your home

PD EDUCATION FROM HOME

MJ Fox Third Thursday Webinar  

Thursday, February 15, 2018   TIME:  9 a.m. PT

TOPIC: Depression and Anxiety in Parkinson’s disease

We’re replaying a popular webinar on depression and anxiety. We’ll discuss the Parkinson’s symptoms of depression and anxiety, and how to treat and manage this aspect of life with the disease.

To register, go directly to: www.michaeljfox.org/page.html?hot-topics-webinar-series

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PD Expert Briefing

Tuesday, February. 27,  2018   10 to 11 a.m.   TOPIC: Parkinson’s disease Psychosis: Hallucinations, Delusions and Paranoia 
Host: Christopher G. Goetz, M.D.

Copy and paste into your internet server: http://parkinson.org/Living-with-Parkinsons/Resources-and-Support/PD-ExpertBriefings-Webinars Registration at their website.

What if I do not have access to a computer?

Yes, participants without computers may access both live and recorded PD ExpertBriefings. To access a live PD ExpertBriefing, on the day of the live event, dial (888) 272-8710 and input passcode 6323567# when prompted (this phone number is separate from the PDF HelpLine).

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LSVT

DATE: Wednesday, February 21,2018    Time: 11:00 PM – 12 Noon                                                           ( Pacific Standard Time)
TOPIC: How do you maintain the LOUD gains you made in LSVT LOUD treatment and stay motivated once treatment has concluded?

Join LSVT LOUD Faculty to hear valuable insights on post-discharge recommendations following LSVT LOUD, including continued daily homework practice, tune-up sessions and LOUD for LIFE® maintenance groups. Opportunities will be provided for you to ask questions during the webinar through voice and chat options.  In your internet server, copy, paste the following https://attendee.gotowebinar.com/register/1338814124016110850  in order to register.

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 PD Telephone at home:  Information unavailable at the present time.

Clinical Study-Parkinsons Disease Dementia Study

Parkinson’s Disease Dementia (PDD) study

 ClinicalTrials.gov is the official US government website for all FDA approved medical trials for Parkinson’s Disease, Stroke, Dementia, Multiple Sclerosis, Alzheimer’s Disease, Traumatic Brain Injury and all other medical conditions.  It is available for anyone to look up and retrieve contact information for the investigator site(s) or study sponsor to contact if interested in participating in research studies.
The following  clinical trial information is being provided for informational purposes only and The NeuroCommunity Foundation is not responsible for the products under investigation or the studies themselves in any way.
For those interested in participating in the evaluation of a new product that Altura Pharmaceuticals is developing that is hoped to lessen the impact of Parkinson’s Disease Dementia (PDD) by improving wakefulness, cognitive and motor function, below is the  contact information .
  • Telephone contact: 866-446-4135
  • Email (confidential): studysite@alturastudies.com

PD Education from Home January 2018

January 2018 PD EDUCATION FROM HOME

PD Expert Briefing    

Topic : Freezing or sweating falls when walking with Parkinson’s Disease

Tuesday, January. 16, 2018, 10 am  – 11 am  PST 

Fay B. Horak, Ph.D., P.T.

To Register: Copy and paste the following website, into your server

http://event.netbriefings.com/event/pdeb/Live/falls2/register.html


LSVT Webinar

Wednesday,January 24 2018

 11am  – 12 noon

Keep it BIG! Tune Ups and other Post-Discharge Recommendations in LSVT BIG®

How do you maintain the BIG gains you made in LSVT BIG treatment and stay motivated once treatment has concluded? Join LSVT BIG Faculty to hear valuable insights on post-discharge recommendations following LSVT BIG, including continued daily homework practice, tune-up sessions and BIG for LIFE® maintenance groups. Opportunities will be provided for you to ask questions during the webinar through voice and chat options.

RegistrationLink: https://attendee.gotowebinar.com/register/6611462755464165121

 

MJ Fox,  and PD Telephone at home webinar information not available at this time.


The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code. 

Mailing Address: 

The NeuroCommunity Foundation

 23705 Vanowen St. # 216                          

West Hills, CA 91307

 

 


January News and PD Support Group Listings

Image result for photo of new year 2018

Happy New Year from THE NEUROCOMMUNITY FOUNDATION!

The NeuroCommunity Foundation:

Phone: 818-533-9550

We hope everyone had a safe and peaceful holiday season.

May the coming year bring good health and happiness to all!

We also hope we can count on your donations to continue our efforts in providing YOU personalized Information and Resources, Education, Symposiums, Up-to-date Research & Clinical trials, Advocacy, Wellness and our PD Support groups! Donations accepted online or can be mailed to us.

At the HELPFUL INFORMATION tab, at our website,

you can read about MEDICARE CHANGES for 2018 and New Medicare cards

CLICK HERE:  January PD SUPPORT GROUP LISTINGS 

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Meet the January guest speakers by Clicking on their name !      

 Allison Smith  Parkinson’s in Balance ( Live Wires Burbank)      

Amy CarlsonEvery Victory Counts, Davis Phinney Foundation  (Santa Barbara)     

 Danica Tolentino CSUN Research- Gait Study  (Simi Valley)

 Dennis Cante Dance helps PD -Even the Tango!  (Claremont) 

 Holly Sacks  – Mindfullness for PD   (Sherman Oaks) 

 Wayne Pickerell – Clinical Research and Trials  in PD  (Ventura)

Karol Ann Sample – Assisted Home Health & Hospice What and Who is Hospice?  Everything you need to know. (Camarillo)     

 

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PD Education Events —  Pasadena – Advances in DBS    January 9                         Free Lecture

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New articles on our website: 

–Sugar and the Brain,

–MS Research progress in 2017,

–Autoimmunity and PD ,

–Caregiver Reminders  for 2018,

–Free Caregiver workshops in Glendale,

–Medicare changes in 2018 and Be Inspired- new thoughts for 2018! 

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Breaking News: CSUN  Clinical Research  GAIT and PD  Sign up to participate in this  study.

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PD   Educational Webinars

-Freezing or Sweating Falls When Walking with Parkinson’s Disease 

Additional educational webinar information was not available at this time. Please check back later.

MAILING ADDRESS:

The NeuroCommunity Foundation  

30721 Russell Ranch Rd  # 140 

Westlake Village, CA  91362

TELEPHONE: (818-533-9550)

 

2018 Caregiver lectures free to the public

C.A.L.M. EDUCATION SERIES (GLENDALE)

JANUARY 11, 2018 @ 9:30 AM – 11:30 AM PST

Recurring Events all year long!

A monthly “Caregivers Are Learning More (C.A.L.M.)” education series  occurs at the Glendale Adventist Medical Center, Live Well Senior Lounge, 1509 Wilson Terrace, Glendale, 91206. Each month we will explore different topics related to family caregiving. 

This series is free and open to the community. Please call us toll-free at 1-855-872-6060 for more information.

List of Topics (January 2018 through June 2018):
January 11, 2018:   “CALM About: Things Every Caregiver Should Know”
February 8, 2018:  “CALM About: How to Hire In-Home Help”
March 8, 2018:       “CALM About: Community Care Options”
April 12, 2018:        “CALM About: Forming a Social Support System”
May 10, 2018:         “CALM About: Fall Prevention/Home Safety”
June 14, 2018:        “CALM About: Communicating with Medical Professionals”

Date:

January 11, 2018

Time:

9:30 am – 11:30 am

Event Category:

Caregiver Education

Organizer

Yvonne Kuo

Phone:

213-821-6919

Venue

Glendale Adventist Medical Center (Live Well Senior Lounge)

1509 Wilson Terrace
Glendale, CA 91206 United States
+ Google Map

Phone:

1-855-872-6060

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

Mailing Address:  The NeuroCommunity Foundation

                                      23705 Vanowen St. # 216

                                        West Hills, CA 91307

 

Welcoming in 2018

Happy New Year and may each day

be peaceful as your senses are awakened!

It is almost the time when we mark the days that have seemingly flown by. We welcome the chance to begin again…counting more slowly… so as to relish each moment of 2018.

It goes too fast.      Let’s drag our feet.

Let’s not fill the time we have up to the top of the rim of our glasses. Be careful not to spill the moments. Each of our sips hold a memory in place.

I wish you all amazing loves, bold adventures, bodies that work perfectly fine and smiles that reflect your gratitude for it all. We are all blessed to be here – however we are.

 Here is a giant hug in celebration of our new year…..
from Joani

“Yesterday is gone. Tomorrow has not yet come. We have only today.                   Let us begin.” — Mother Teresa

Think Big And Don’t Listen To People Who Tell You It Can’t Be Done. Life’s Too Short To Think Small.”- Tim Ferriss

“Move Out Of Your Comfort Zone. You Can Only Grow If You Are Willing To Feel Awkward And Uncomfortable When You Try Something New.”                   – ­Brian Tracy 

“I think in terms of the day’s resolutions, not the years.”  — Henry Moore

   “Stop saying yes to things you dislike “­­­ —–Anonymous

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 Mailing Address:  The NeuroCommunity Foundation

                                         23705 Vanowen St. # 216

                                             West Hills, CA 91307

 

Lecture on new Advances in DBS Pasadena January 2018

Related image

Presentation on New Advances in DBS treatments

January 9, 2018

Deep brain stimulation (DBS) therapy has been proven over the past 20 years* to be an effective treatment option for symptoms of Parkinson’s disease. The latest advancements to DBS offer innovations in the way the therapy is delivered and how it is controlled. Attend this free informational seminar to learn more about DBS therapy, including the benefits and risks of this therapy. Call 323-326-4158 or email jsykes@sjm.com to reserve your spot.

Igor Fineman, MD, FACS
Jennifer Birch, RN, MSN, ACNP-BC
Raymond Neurosurgery & Spine
Yvette Yeung, MD | DaVita Healthcare Partners
Tyler Cheung, MD | Huntington Hospital

January 9, 2018 | 6:00 p.m. – 8:30 p.m.
South Pasadena Public Library Community Room
1115 El Centro Ave
Pasadena, CA 91030

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

Just Click Here and Shop

Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process