MS Research progress for 2017

Important Research Progress in 2017: Stopping MS, Restoring What’s Been Lost, and Ending MS Forever

Significant research advances were made in 2017, offering new leads toward our vision of a world free of MS. The Society’s research portfolio has 360 projects under active management, and in 2017 the Society invested $40 million for new and ongoing research projects and initiatives around the world. We support collaborations and innovation, convene thought leaders, leverage new technologies and data, invest in training to ensure a robust future workforce, and learn from other diseases, funders and people living with MS.

This year, the first therapy specifically for primary progressive MS was approved by the FDA, and progress occurred in many other approaches that will identify solutions for people living with MS today and ultimately lead to prevention and a cure. Here is a brief summary of significant 2017 research progress and initiatives aimed at stopping MS in its tracks, restoring function, and ending MS forever.

STOPPING MS – Toward New Therapies and New Understanding

[Read more…]

Sugar and our brain

Americans love sugar. Together we consumed nearly 11 million metric tons of it in 2016, according to the US Department of Agriculture, much of it in the form of sugar-sweetened beverages like sports drinks and soda.

Now, new research suggests that excess sugar — especially the fructose in sugary drinks — might damage your brain. Researchers using data from the Framingham Heart Study (FHS) found that people who drink sugary beverages frequently are more likely to have poorer memory, smaller overall brain volume, and a significantly smaller hippocampus — an area of the brain important for learning and memory.

But before you chuck your sweet tea and reach for a diet soda, there’s more: a follow-up study found that people who drank diet soda daily were almost three times as likely to develop stroke and dementia when compared to those who did not.

[Read more…]

Dec 9th How to Shake the Shakes program at UCLA

At UCLA  on December 9th, ” How to Shake the Shakes” program. 9am – 12 noon

CALL    (310) 571-5741  for additional  information and registration before Dec. 7th

EMAIL:  ucla.tremor@gmail.com

The program is titled “How to Shake the Shakes “with Dr. Yvette Bordelon and  Dr. Nader Pouratian speaking.   

December 2017 News and Support group listings

DECEMBER NEWS from The NeuroCommunity Foundation 

IN THIS TIME OF GIVING, WE ARE COUNTING ON YOU FOR YOUR SUPPORT! 

 We are pleased to continue to provide YOU and your family personal contact with our Education Director in providing Information and Resources, Education, Symposiums, Up-to-date Research & Clinical trials, Advocacy, Wellness and our PD Support groups!

Just click on the donate button below and then click on the donate button on the top right at our website.   Thank you!       ———————————————-

CLICK HERE:  PD SUPPORT GROUP LISTINGS for DECEMBER 2017

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DECEMBER GUEST SPEAKERS  for PD Support Groups

Read about the guest speaker by Clicking on their NAME                                       Elaine Miller-Karas,  LCSW  Topic: How to restore or increase resiliency to your nervous system. (Claremont)

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Don’t miss all the new information in Wellness Therapies, Be Inspired, Helpful Information and so much more!

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PD EDUCATION FROM HOME ( go to PD Education Events on the Home Page) 

-MJ Fox Third Thursday: 2017 Parkinson’s Research Year in Review   

-LSVT :Webinar: Treating the Non-Motor Symptoms of Parkinson Disease with LSVT BIG®   and LSVT LOUD®

-PD Telephone at home: Hallucinations and Delusions in PD 

-PD Expert Briefing   No webinar in December

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MAILING ADDRESS: The NeuroCommunity Foundation   

32705 Vanowen St.  # 216   West Hills, CA  91307

TELEPHONE: (818.745.5051)

Join the online clinical study

Have you heard of the NEW  online study that empowers people with PD to partner  with researchers and accelerate the development of break-though treatments?

The MJ Fox foundation has a new program called FOX INSIGHT.

It’s open to anyone with or without PD.

To learn more about it, go to: https://foxinsight.michaeljfox.org

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 Mailing Address: 

The NeuroCommunity Foundation

 23705 Vanowen St. # 216

 West Hills, CA 91307

 

You can be the unexpected artist with PD

CAN YOU IMAGINE…..

 Chip Colley was an outdoorsman, not an artist. “I had friends who were artists, but I couldn’t paint at all,” he says.

Colley grew up fishing with his father on the Escambia Bay near his hometown of Pensacola, Florida. When his son, Zachary, was old enough, Colley introduced him to the timeless father-son tradition of pre-dawn angling.

And, when he was first diagnosed with PD, Colley fled to the cypress bog behind his house to reflect on this new, largely unwelcome phase of his life.

Early on in the disease, he was hit hard by bouts of insomnia that would last until three o’clock in the morning. Not a huge fan of television (“It stresses me out.”), he struggled to occupy these sleepless nights.

During the day, Colley frequented the three art galleries in town. He enjoyed perusing the creations of the professional artists until one day, one of those artists came up to him and asked, “Why don’t you try to paint something?”

He initially dismissed the idea outright. “My hands were always shaking so hard that I couldn’t even write my own name,” he says.

However, during one of the endless, empty nights, Colley made a decision that would forever alter his outlook on his disease. He grabbed a sheet of paper and some pencils and began to draw.

To his surprise, the drawings turned out “pretty good.” Colley began to expand his scope, digging through boxes of his children’s old art supplies. “I started painting with anything I could get my hands on,” he says.

He had questions about his newfound penchant for portraiture, but continued to allow his creative juices to flow. The next time Colley went to his neurologist for a checkup, he presented the doctor with a stack of paintings and asked, “What’s this about?”

The physician was impressed, but not surprised by Colley’s prowess. He suggested Colley enroll in a study about PD and creativity being conducted by the University of Florida. “We walked in and they just handed us a bag of art supplies and told us to do our thing.”

Colley’s art has gradually gotten better. He prefers painting and sculpting, sometimes combining the two to create paintings with embossed surfaces. “It’s been great. I’ve met so many people since I started doing art,” he says. “When you’re focused on a project, you tend not to think about your physical problems. It just takes you away.”

His advice for fellow sufferers: “Pick up a paintbrush, dance, sing. Do anything you want, but do not just sit there. Enjoy your life. I’m considered an artist now. I would never have dreamed it in a million years.”

 

PD Education opportunities from your home

DECEMBER 2017

PD EDUCATION FROM HOME

MJ Fox- Third Thursday Webinar

Title: 2017 Parkinson’s Research Year in Review

Date: Thursday, December 14, 2017

Time: 9 am – 10 : 30 am ( PST)     Duration:  1 hour  30 minutes

TO REGISTER: Copy and paste the link below:                                                                                                                                                                                                                                                    LINK: www.michaeljfox.org/understanding-parkinsons/webinar-registration.

In this extended 90 minute webinar, it covers advances in the understanding of PD and development of new treatments.

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Title: Treating the Non-Motor Symptoms of Parkinson Disease with LSVT BIG® and LSVT LOUD® 

Date: Wednesday, December 6, 2017
Time:  11 AM – 12 noon

TO REGISTER:  copy and paste the link below LINK: https://attendee.gotowebinar.com/register/3058086365585295617

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PD Telephone at home

 TOPIC: Hallucinations  and Delusions in PD 

Speaker: Caitlan Mulligan, MD Movement Disorder Fellow

Date: December 11, 2017,

 Time: 10:00 am – 11:00 am (PST)

Call:  1-800-767-1750  and enter the code: 54321#   (call in about 3 min prior to the hour) Webinars are 2nd Tuesday of each month


PD Expert Briefing    

No Webinar in December

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The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

 The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

Mailing Address:

The NeuroCommunity Foundation   23705 Vanowen St. # 216   West Hills, CA 91307

 

The simple joys of holidays

Make this holiday season a simple one, filled with smiles, hugs and time for yourself and loved ones. Remember, you are special.. there is only one person like you! 

 

 

The importance of TIME in your life

SOME THOUGHTS DURING THIS HOLIDAY SEASON

 

Value your time

Once a moment is gone, you cannot get it back. Spend each one wisely, with intention, with purpose, with meaning.

Your time is more precious than just about anything else you have. For it is with time that you create, access and experience all else.

Don’t let yourself be tricked into providing it too cheaply. What appears to be a bargain in terms of money can end up imposing a terrible cost on your irreplaceable time.

Do you constantly feel you have too little time? That’s a strong indication you’re not placing a high enough value on the time you have.

Each day comes to you with plenty of time for rich, creative, meaningful living. Hold every moment to a high standard, and insist on spending them all engaged in what truly matters.

Time is your opportunity to fill life with great treasure. Make good and meaningful use of every single minute.
— Ralph Marston

 

 

Every moment counts

Value your time

Once a moment is gone, you cannot get it back. Spend each one wisely, with intention, with purpose, with meaning.

Your time is more precious than just about anything else you have. For it is with time that you create, access and experience all else.

Don’t let yourself be tricked into providing it too cheaply. What appears to be a bargain in terms of money can end up imposing a terrible cost on your irreplaceable time.

Do you constantly feel you have too little time? That’s a strong indication you’re not placing a high enough value on the time you have.

Each day comes to you with plenty of time for rich, creative, meaningful living. Hold every moment to a high standard, and insist on spending them all engaged in what truly matters.

Time is your opportunity to fill life with great treasure. Make good and meaningful use of every single minute.
— Ralph Marston

 

 

 

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

Just Click Here and Shop

Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process