Is there joy in being a Caregiver?

inspiration 2 august

Caregiving: Recognizing the Joys Beyond the Challenges

The challenges that life presents us with can also provide tremendous opportunities for growth. One of the best examples of how challenges can yield tremendous rewards is being a caregiver to a chronically ill child or a grandparent who needs extra care.

The Trees… and the Forest 
Granted, the job isn’t always easy. Taking care of a family member is filled with details, like medication schedules which, if left unnoticed can have major negative implications. And regardless of how other household members are involved, or not involved, on a day-to-day basis, caregiving is a shared experience because caregiving affects so many aspects of daily life, including finances, meal-planning, household chores, and vacations, to name but a few.

If you are caregiver, one thing you know for sure is that helping is all about sweating the small stuff – every last detail. And no family member is left untouched.

Depending on the level of care required, and its impact on daily life, it is easy to get caught up in the process of handling the details and not acknowledge the joys. While those daily details are critical, it is a natural response to keep their focus on the trees and forget that all of these trees make up a beautiful forest. But it is in taking the bird’s eye view that the real meaning of being a caregiver begins to take shape.

But are you also staying focused on the joy? There are few things more gratifying in life than making a difference in someone else’s life, and helping a loved one in need provides that opportunity every day.

Here are some ways to help you push the blessing button on those days when the details feel overwhelming.

[Read more…]

Current research for treatment of Parkinsons disease

NEW RESEARCH  for PD treatments

Make sure and read the new and potentially promising research that is currently taking place. 

 1. New Way of Administering Apomorphine for PD Movement “wearing off” Periods.

2. Inhaled Levodopa to Treat PD Movement “wearing off” Periods

3. Probiotics and Fiber Formula to Reduce Constipation in Parkinson’s

[Read more…]

UCLA research study seeking PD participants

UCLA  is seeking participants for PD study

 “Perceptual Decision Making under Conditions Of Visual Uncertainty”

PARKINSON’S DISEASE STUDY
To volunteer or for more information:

Please write to APerugini@mednet.ucla.edu or call 310-825-0278

A UCLA research study,

“Perceptual Decision Making under Conditions
Of Visual Uncertainty”in the Basso laboratory at the Semel Institute for Neuroscience and HumanBehavior, INVITES YOU to be in a research study. The purpose of the research is to explain how brain regions that are affected by movement disorders are involved in eye movements and decision making.

[Read more…]

Telephone Caregiver evening support group

Image result for photo of telephone

Telephone Caregiver Support Group-USC

When:  2nd Monday of each month.

Time: 7:15 pm -8:45 pm 

To Register and for information call:   1-855-872-6060

Join us for an opportunity to share your feelings, develop friendships, receive emotional support, and discuss solutions to common caregiving issues with other family caregivers. The TELEPHONE CAREGIVER SUPPORT GROUP “meets” the 2nd Monday of each month.

*Please note: This support group is conducted over the telephone.*

Please contact us at toll-free 1-855-872-6060 for more information . You will need to call and register to receive an access code for this event.

The NeuroCommunity Foundation is here for you:
For information about Parkinson’s disease and movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley, contact us here or call 818-885-8623 to speak with Jan D. Somers, Education Director, Parkinson’s and Movement Disorders Information Center at CARE, The NeuroCommunity Foundation.

Participants needed for new research studies and clinical trials

Participants needed for new research studies and clinical trials

The NeuroCommunity Foundation, in conjunction with the research community, want to ensure you have the opportunity to participate in research studies to help others and yourself. Your participation can assist researchers find new methods to prevent, detect or treat many neurological diseases.The following is a list of available research studies now recruiting interested participants. It is a small portion of the effort and dedication the research community places for advances in treatments for diseases that affect us all.  The following studies include aging, Parkinson’s disease, Multiple Sclerosis, Stroke and Traumatic Brain Injury.

[Read more…]

Guide for Caregivers and Families with Parkinsons

 kimmel henry

A guide for caregivers by Dr. Henry Kimmel

MEET HENRY KIMMEL PSY.D

Burbank Support Group Guest Speaker: “A Guide for Caregivers”.

Dr. Henry Kimmel, Psy.D., is a Clinical Psychologist in private practice in Encino, CA. He treats individuals, couples, and families and has specialized training with older adults and men. Dr. Kimmel is the recipient of the Starr Vega Award for Diversity Psychology. He has presented to other PD Support groups through The NeuroCommunity Foundation.

[Read more…]

Taking Care of Yourself 9 Tips for Caregivers

caregivers

Taking care of yourself 9 Tips for Caregivers

1. Although challenging, try to take charge of your life–don’t let your loved one’s illness or disability always take center stage.

2. Be good to yourself. Do your up most to preserve your own health through exercise, nutrition, proper rest. and periods of enjoyment. Every day, take time to reach out to a friend for inspiration, a coffee date or even a joke to make you laugh.

3. Watch out for signs of depression in yourself and don’t delay in getting professional help when you need it.

4. Accept help with others offer it. If they ask, suggest specific things they can do.

5. Educate yourself about your loved one’s condition. Information is empowering.

6. There is a difference between caring and doing. Being open to new ideas and technology could promote your loved ones independence and emotional well-being.

7. Trust yourself and your own instincts. Many times they lead you in the right direction.

8. .It is healthy to feel sad about your losses. Allow yourself to dream new dreams that can be incorporated into your life the way it is at the present time.

9. Seek support from other caregivers. Attend a support group or program for family caregivers. Knowing you are not alone can give you strength to keep going. 10. Take an extra 5 minutes to breathe and sit still after a long day.

REMEMBER : KEEP THE LINES OF COMMUNICATION OPEN WATCH FOR SIGNS OF DEPRESSION IN YOURSELF TAKE TIME TO PROTECT YOUR PHYSICAL HEALTH FIND A QUIET SPACE EACH DAY TO SPEND ALONE PLAN A SPECIAL EVENT EACH WEEK TO REDUCE STRESS

Your role is very important critical to the well-being of your loved one with Parkinson’s disease (PD). But it’s also essential that you allow yourself to feel the emotions that may accompany your changing role in your relationship.

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley, contact us here or call 818-885-8623.

 

Home Care Services Consumer Protection Act

home care

California law established the Home Care Services Consumer Protection Act which, as of January 2016, requires Home Care Organizations to be licensed and creates a public online registry for Home Care Aides who have been background checked. This law is intended to promote consumer protection for elderly and disabled individuals who hire private aides to come into their homes and provide assistance with activities of daily living. [Read more…]

Smart Socks Gait Monitoring System Research Study

smart socks

Participants needed for a new research study at Casa Colina Hospital and Centers for Healthcare in Pomona to evaluate Smart Socks Gait Monitoring System for improving rehabilitation outcomes. The Sensoria Smart Socks gait monitoring system is a pair of socks and anklet bands that provide real-time monitoring of gait. Falls and subsequent health issues related to challenges in gait (walking) can occur when individuals are recovering from a stroke or brain injury or are dealing with progressive neurological disorders such as Parkinson’s Disease (PD) or Multiple Sclerosis (MS). The goal of the research study is [Read more…]

Connecting With Family Caregivers

Lauren Simon, Author

Lauren Simon, Author

Patty, a regular at the San Fernando Valley Caregivers Only Parkinson’s Support Group in West Hills, participated in an interesting webinar (her first!) about Connecting with Family Caregivers: Understanding the Family Experience.

“Got to see a very interesting interview with author Lauren Simon who has a website of DontStrangleThePatient.com!! Of course laughter keeps you sane under these stressful times, and it was very good to find out that we are not alone during the challenging days. Unfortunately everyone gets to the “red flag” when they do not know how to cope. I found myself yelling when I wanted to be more relaxed at times too. Then the guilt smacks you around, and you feel terrible! She did mention having the ability to find people who go through these tough times to put you back to reality (support groups and friends are wonderful – thank you!!). This webinar was really for health care providers and caregiver foundations, but I did get to see that I was not alone. Lauren Simon does have a book out that would be very helpful to the novice”! [Read more…]

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

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Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process