Say yes to traveling this summer with these savvy tips

Don’t delay!! Make those summer travel plans now!

Here are some tips for making traveling easier for you.

Your difficulties do not have to interfere with traveling, which should be an enjoyable experience and not limited or avoided because of you or your loved one’s disease. But planning ahead is key to avoid these difficulties. The following guidelines should help to make your next trip anxiety-free.

Tips for Traveling with a movement disorder 

Always try to travel with a companion.

  • Place the names of your doctor, insurance company, emergency contact, and medications in your wallet or purse.
  • Carry identification stating that you have a neurological disease.
  • Use a “fanny” pack or backpack so that you have both hands free to balance as you walk, especially if walking any distance.
  • Pack snacks and carry a water bottle to take medications.
  • Wear comfortable, loose-fitting clothing and good walking shoes.
  • When making hotel reservations, request a room on the ground floor or near an elevator. Ask if they have rooms that are handicapped-accessible; these usually include grab bars in the shower and bathroom and have wider spaces between furniture for wheelchair access.

Traveling With Medications

  • Always have at least a day’s dosage of medication in your pocket or purse.
  • Try to carry all of your medications with you, in the event that your luggage gets misplaced.
  • Pack enough medications to last the entire trip.
  • Do not rely on out-of-town, or especially out-of-the-country, pharmacies for refills.
  • Check with your doctor about any over-the-counter drugs, such as those for motion sickness or diarrhea, before you leave.
  • Find out if your medications are “sun-sensitive” and plan accordingly.
  • Carry a list and schedule of medications with you.
  • If possible, use a watch with an alarm or an alarm pillbox. If you are traveling with time changes it may be difficult for you to remember on your own.

Travel by Car

  • Many medications can cause drowsiness, particularly after eating. If you are driving, take a nap before you go and avoid eating for two to three hours before departing.
  • Do not overestimate you abilities. While you may be capable of driving short distances to and from home, a longer road trip may require much more stamina. Either break the trip up into shorter distances with frequent stops, or share the driving with someone else.

Travel by Air

  • Request a non-stop flight and an aisle seat.
  • Check as many bags as possible, but remember to keep your medications in your carry-on.
  • Use airport shuttles, or ask for a wheelchair if your gate is a far distance.
  • Ask for early seating for a few extra minutes to board and get comfortable.
  • Use the bathroom before you get on the plane. Airplane bathrooms are often small and not handicapped-accessible.
  • If you are on a restricted diet, request a special meal in advance.

Travel by Bus or Train

  • Wheelchair lifts are generally available for entrances and exits.
  • Seats can generally be removed to accommodate wheelchairs.
  • Try to get an aisle seat near the exit to make getting on and off easier.

The NeuroCommunity Foundation is here for you:

For information about movement disorders, support groups, wellness programs, education events, research and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

Where to Donate Durable Medical Equipment

The Durable Medical Equipment Aid center

If you or someone you knows would like to donate durable medical equipment that you no longer use or need, here is a SFV organization that will repair, clean and give the equipment to someone in the community who really needs it.. at no charge!

They will even pick your items!!

It is a non-profit organization:

The Durable Medical Equipment Aid

www.thedme.org

19528 Ventura Blvd  # 430

Tarzana, Ca 91356

818 298-9893

Ask for Nilo. She is the owner and director. Please let Nilo know that you received the information from The NeuroCommunity Foundation.  Thank you.

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

Resources for Seniors

HELPFUL INFORMATION

Below are some great resources for Seniors:  Click on the green title and it should take you directly to the webpage. If your computer is NOT set up to go directly to links, we recommend that you adjust your settings in your computer.

Transportation Resources for Older Adults
Selling a Home with Modifications for Older Adults
Fall Prevention
Assistive Technology Buying Guide
Home Organization for Newly Disabled Seniors
Special Needs Seniors: Planning for the Future of this Vulnerable Population
Legal Guide for Newly Disabled Seniors

The above information was received by: ForeverCurious  a group of educators and librarians who curate information online.

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

Exercise and Activities in SFV to manage neurological symptoms

 

Exercise Routines And Activities To Manage Symptoms And Improve Quality Of Life

Live broadcast of Yoga for Parkinson’s with Renee Le Verrier, RYT

Pomona: Casa Colina Parkinson’s Disease Speech and Exercise Group

Azusa: Casa Colina Parkinson’s Disease Speech and Exercise Group

Pasadena: group and private fitness classes, cardio, Pilates, restorative yoga, Gyrotonic Expansion System®, and meditation with Leslie Frank, DPT (neurological program and multiple sclerosis program)

San Gabriel & San Fernando Valleys, Ventura County: fitness and targeted exercises for neurological disorders with Lori Michiel, NASM-CPT

Tarzana and Encino: aqua fitness with Deborah Goldberger (also private and semi-private instruction in your pool)

Encino: adult fitness classes including Tai Chi & Chi Qong at Balboa Sports Center, LA City Recreation and Parks

Northridge: therapeutic exercises on land and in the water at the Center of Achievement Through Adapted Physical Activity at California State University, Northridge (CSUN)

Northridge: Laughter Yoga with Shelley Bell, CLYL, CLYT

West Hills: art therapy with Alison Paolini

San Fernando Valley, Ventura County: Neurotherapeutic Yoga with Colleen Carroll, YT

San Fernando Valley, Ventura County: Nordic Walking with Carol H. Prata

Los Angeles, San Fernando Valley, Santa Barbara: therapeutic and intergenerational orchestra with MusicMendsMinds

Tarzana: Invertigo Dance Theatre is ready to bring its Dancing Through Parkinson’s

Westlake Village: weekly exercise class/Debbie Jew, coordinator
1st Friday of month – Exercise2nd Friday of month – Music Therapy with Debbie Sipos
3rd Friday of month – “Chair” yoga with Jamie Hampton4th Friday of month – Tai Chi with Nora Li

Ventura County: PD Fighters non-contact Rock Steady Boxing Method with Jennifer Parkinson

Ventura County: Laughter Wellness with Arlene Raisner, CLYL

Newbury Park: Anytime Fitness 24-hour gym great workout classes recommended by Judy C.

Camarillo: Mindfullness with Holly Sacks

Camarillo, Ventura: Art of Moving for PD and movement disorders with Camille Torgeson

Camarillo: Focus on Balance, Tai Chi for Rehabilitation, Tai Chi Sun, Aqua Exercise with Camille Torgeson

Ventura: Focus on Balance, Tai Chi for Rehabilitiation, Tai Chi Sun, Walking with Camille Torgeson

Santa Barbara: Move to Connect for PD with Leslie Sack and Ruth Wishengrad

 

Happiness is how I arrange my mind

OH MY , I REALLY DO HAVE A CHOICE !!

by our own Joan W.

The 92-year-old, petite, well-poised and proud lady, who is fully dressed each morning by eight o’clock, with her hair fashionably coiffed  and makeup perfectly applied, even though she is legally blind, moved to a nursing home today.

Her husband of 70 years recently passed away, making the move necessary.

After many hours of waiting patiently in the lobby of the nursing home,she smiled sweetly when told her room was ready.

As she maneuvered her walker to the elevator, I provided a visual description of her tiny room, including the eyelet sheets that had been hung on her window.

I love it,” she stated with the enthusiasm of an eight-year-old having just been presented with a new puppy.

“Mrs. Jones, you haven’t seen the room, just wait.” “That doesn’t have anything to do with it,” she replied.  “Happiness is something you decide on ahead of time. Whether I like my room or not doesn’t depend on how the furniture is arranged… it’s how I arrange my mind.

I already decided to love it “It’s a decision I make every morning when I wake up. I have a choice; I can spend the day in bed recounting the difficulty I have with the parts of my body that no longer work, or get out of bed and be thankful for the ones that do.

Each day is a gift, and as long as my eyes open I’ll focus on the new day and all the happy memories I’ve stored away just for this time in my life.

Old age is like a bank account: you withdraw from what you’ve put in.

So, my advice to you would be to deposit a lot of happiness in the Bank account of memories.

I am still depositing. Now, have yourself a beautiful day. In gratitude for every moment,   warmest regards from Joan

Obtaining Your Medical Records when your MD is not available

 How to obtain your medical records,when your MD is no longer available.

 Reprinted from  https://www.verywell.com  by Trisha Torrey  March 20, 2017

Doctors don’t stay in practice forever. Just like the rest of us, they change jobs, retire, move, or even die. If you can’t find your doctor, it may be more difficult to get the medical records you’re looking for.

Obtaining copies of your medical records can be a challenge, but it’s possible to find them if you’re persistent. There are a variety of steps you can take; some are easy and others rather difficult.

[Read more…]

We must do this everyday

LAUGHTER IS NECESSARY IN OUR EVERYDAY LIFE.

Sometimes, it is very hard finding any humor in our life. Especially when we are feeling under the weather, we are tired of taking care of ourselves and/or someone else or we are constantly worrying about something out of our control.

But we NEED to laugh each day. It is healing and a stress reliever.

Here is a birthday card I recently received:

FRONT: It’s your birthday, and you are probably hoping you can just let this one slip by. But, somebody’s bound to notice….

INSIDE: Kinda like when you fart in a crowded elevator!  Everyone notices!

Here are some ideas that could put some laughter in your life!

[Read more…]

Family Caregivers and Self Employment tax information

Flat design tax calculation

Important Tax info for Family Caregivers

Special rules apply to workers who perform in-home services for elderly or disabled individuals (caregivers). Caregivers are typically employees of the individuals for whom they provide services because they work in the homes of the elderly or disabled individuals and these individuals have the right to tell the caregivers what needs to be done. These services may or may not be provided by a family member. If the caregiver employee is a family member, the employer may not owe employment taxes even though the employer needs to report the caregiver’s compensation on a Form W-2. See Publication 926, Household Employer’s Tax Guide for more information. However, in some cases the caregivers are not employees. In such cases, the caregiver must still report the compensation as income of his or her Form 1040, and may be required to pay self-employment tax depending on the facts and circumstances.

[Read more…]

What caregivers can do to decrease the strain on their relationships

Caregiving: Dealing with the strain on your marriage

Caregiving and marital strain often go hand in hand. Know the impact caregiving can have on your marriage and what you can do about it.

By Mayo Clinic Staff – January 2017

Marriage isn’t always easy. This can be especially true for those acting as a caregiver for a parent, in-law or other loved one with Alzheimer’s. Understand how caregiving might affect your marriage and what steps you can take to protect your relationship.

Source of marital strain

Taking care of someone with Alzheimer’s can be consuming and stressful and that stress can affect your marriage. Caregiving can affect your relationship with your spouse by:

[Read more…]

Save on medications this year

Image result for photo of medication savings

Did you know you can save on your medications costs in 2017?

How GoodRx Can Help

GOOD RX is the place to go to receive the LOWEST prices in your neighborhood for medication. All you have to do is enter the name of the medication, your zip code, and you will know how much a prescription costs to get filled at both local pharmacies, big stores or even warehouse stores.

It’s free… It’s online  and it works!!   Go https://www.goodrx.com/how-goodrx-works

Every week we collect millions of prices and discounts from pharmacies, drug manufacturers and other sources. Here’s how you can use it to save:

Use GoodRx’s drug price search to compare prices (just like you do for travel or electronics on other sites) for your prescription at pharmacies near you. We don’t sell the medications, we tell you where you can get the best deal on them.

GoodRx will show you prices, coupons, discounts and savings tips for your prescription at pharmacies near you.

[Read more…]

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

Just Click Here and Shop

Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process