MS Support Groups Tarzana -Simi Valley-Santa Clarita

MS SUPPORT GROUPS

Here are 3 MS Support groups  you might not know about!

Cornerstone Church 

2080 Winifred St.  Simi Valley, CA 93063

11:00 AM – 1:00 PM    ongoing

First Monday of the Month

Please call before attending a meeting to confirm time and location.

Contact information

Dennis Zurcher     dczurcher@sbcglobal.net
805-584-2526

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Tarzana Community & Cultural Center
19130 Ventura Blvd.
Tarzana, CA 91356

Ongoing

9:00 AM – 12:00 PM

Second Saturday of the Month

Please call before attending a meeting to confirm time and location.

Contact information

Maria De Orellana
cyt1709@aol.com
818-370-8073


Saint Kateri Catholic Church  

22508 Copper Hill Dr.
Santa Clarita, CA 91350

6:30 PM – 8:00 PM

ongoing

Second Thursday of the Month

Please call before attending a meeting to confirm time and location.

Contact information

Eire Garcia, Group Leader
emlina6@cs.com
661-297-6887

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease,  MS and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

 

 

Therapeutic Humor promotes wellness

What is therapeutic humor?

Therapeutic humor is any intervention that promotes health and wellness by stimulating a playful discovery, expression or appreciation of the absurdity or incongruity of life’s situations.

This intervention may enhance work performance, support learning, improve health, or be used as a complementary treatment of illness to facilitate healing or coping, whether physical, emotional, cognitive, social or spiritual.

Laughter is the power of positive healing,” she said. “I’ve seen it work best for people with losses – death, divorce, a job, for example. Humor is a tool to empower people to move forward. It helps them improve their quality of life, to take better care of themselves.”

“A belly laugh increases the ability of your immune system to fight infections,” said Elizabeth Taylor, on the faculty of Bastyr University, the Seattle-area institution devoted to natural medicine.

Tip to Relieve Stress and Be Happier   by Roberta Gold, Laughter for the Health  of it. Los Angeles based Recreation Therapist and Humor Therapist

Don’t look at the news headlines first thing in the morning.  Don’t watch the news right before going to bed.  Instead think of something you really enjoyed doing during the day.  Make that your last thought before you go to bed.

There are so many benefits you can receive from laughing more. Relieve your stress, improve immunity and even tone up your abs.

Roberta belongs to an organization called AATH.org  – The Association for Applied and Therapeutic Humor.  Visit their website to find research, books and articles about humor and humor therapy.

If more people listened to the comedy channel on the radio when they’re in their cars, there would be much less road rage.You can lower your cortisol levels (the hormone that may be making you fat) by simply laughing, even if you start with a fake laugh.  Your body doesn’t differentiate between a real laugh and a fake one.  When you’re feeling you’re lowest, force yourself to laugh.

When you get hit with intense “stuff” turn to gratitude. It will make it easier for you to laugh and feel better.  Write down what you’re grateful for in a notebook. (Writing in long hand will give you the best results)

Write a “to do” list and cross off something you’ve accomplished each day. When you cross off an accomplishment, or write a gratitude list, it will make you feel happier.

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease, Stroke, TBI and MS – other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

 

Breathing efficiently during our summer heat

The cooling way to breath during summer!

Colleen Carroll, CYT

Colleen Carroll, CYT

Colleen Carroll, CYT, is a yoga therapist specializing in Neurological disorders. With the heat upon us, Colleen is sharing this video tutorial of the cooling breath, a wonderful yoga breathing technique perfect for hot weather and for any condition or situation that causes excess heat in the system. [Read more…]

Music Therapy Wellness clinic at CSUN

Music Therapy Clinic Information

The Music Therapy Wellness Clinic at CSUN

The Music Therapy Wellness Clinic provides individually designed music activities for children and adults with disabilities * PD, MS, STROKE and TBI)  and special challenges, including autism, developmental delay, physical, mental and emotional disorders, and learning disabilities.

Music therapy is a field that uses music in a prescribed manner as a treatment for rehabilitating, maintaining, and improving the lives of persons with physical, intellectual and emotional disabilities. Music Therapy is a creative arts therapy similar to others such as Art, Dance, and Drama Therapy. It is, however, unique in that music provides an accessible and enjoyable medium for growth and learning. It is a healing art, based on scientific principles and grounded in research.

The Music Therapy Wellness Clinic is dedicated to creating an environment where an individual with special challenges can acquire necessary life skills through the unique, creative and enjoyable medium of music. Our therapists are internationally recognized and encompass a range of techniques and areas of expertise. Our entire treatment team is dedicated to creating the opportunity for each participant to express his or her true creative essence while gaining needed skills and enhancing self-esteem.

The Music Therapy Wellness Clinic is a teaching clinic for the CSUN Music Therapy Department. As such, all sessions are utilized for student observation and learning and are part of the educational process for future music therapists.

Some of the benefits of Music Therapy include:

  • Development of fine and gross motor skills
  • Improvement in acquisition and application of academic fundamentals
  • Development of practical life skills
  • Increase in socialization
  • Enhancement of self-esteem
  • Expansion of the quality of life through musical enjoyment and creative self-expression

The Music Therapy Wellness Clinic provides individual and group sessions conducted by a highly trained and experienced Music Therapist. A variety of instruments are used, including piano, guitar, percussion, auto-harp, recorder, electronic instruments, harmonica, and voice.

Contact Information

To contact the clinic please call 818-677-5663 or you can email us at csunmtwc@csun.edu

 

 

 

 

 

 

Exercise and Activities in SFV to manage neurological symptoms

 

Exercise Routines And Activities To Manage Symptoms And Improve Quality Of Life

Live broadcast of Yoga for Parkinson’s with Renee Le Verrier, RYT

Pomona: Casa Colina Parkinson’s Disease Speech and Exercise Group

Azusa: Casa Colina Parkinson’s Disease Speech and Exercise Group

Pasadena: group and private fitness classes, cardio, Pilates, restorative yoga, Gyrotonic Expansion System®, and meditation with Leslie Frank, DPT (neurological program and multiple sclerosis program)

San Gabriel & San Fernando Valleys, Ventura County: fitness and targeted exercises for neurological disorders with Lori Michiel, NASM-CPT

Tarzana and Encino: aqua fitness with Deborah Goldberger (also private and semi-private instruction in your pool)

Encino: adult fitness classes including Tai Chi & Chi Qong at Balboa Sports Center, LA City Recreation and Parks

Northridge: therapeutic exercises on land and in the water at the Center of Achievement Through Adapted Physical Activity at California State University, Northridge (CSUN)

Northridge: Laughter Yoga with Shelley Bell, CLYL, CLYT

West Hills: art therapy with Alison Paolini

San Fernando Valley, Ventura County: Neurotherapeutic Yoga with Colleen Carroll, YT

San Fernando Valley, Ventura County: Nordic Walking with Carol H. Prata

Los Angeles, San Fernando Valley, Santa Barbara: therapeutic and intergenerational orchestra with MusicMendsMinds

Tarzana: Invertigo Dance Theatre is ready to bring its Dancing Through Parkinson’s

Westlake Village: weekly exercise class/Debbie Jew, coordinator
1st Friday of month – Exercise2nd Friday of month – Music Therapy with Debbie Sipos
3rd Friday of month – “Chair” yoga with Jamie Hampton4th Friday of month – Tai Chi with Nora Li

Ventura County: PD Fighters non-contact Rock Steady Boxing Method with Jennifer Parkinson

Ventura County: Laughter Wellness with Arlene Raisner, CLYL

Newbury Park: Anytime Fitness 24-hour gym great workout classes recommended by Judy C.

Camarillo: Mindfullness with Holly Sacks

Camarillo, Ventura: Art of Moving for PD and movement disorders with Camille Torgeson

Camarillo: Focus on Balance, Tai Chi for Rehabilitation, Tai Chi Sun, Aqua Exercise with Camille Torgeson

Ventura: Focus on Balance, Tai Chi for Rehabilitiation, Tai Chi Sun, Walking with Camille Torgeson

Santa Barbara: Move to Connect for PD with Leslie Sack and Ruth Wishengrad

 

Is it time to check your Vitamin D levels

Vitamin D and MS

If you have MS….

QUESTION: “Should I have my blood levels of vitamin D checked?”

ANSWER: Probably, agree most doctors.

Click on the colored link below; it will take you directly to the article

Read more about vitamins herbs and minerals in MS. (pdf)

Published by the National MS Society: http://www.nationalmssociety.org

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code

NEW MS drug treatment Ocrevus approved from FDA

This information is from: NBC NEWS http://www.nbcnews.com

The Food and Drug Administration approved a new drug to treat multiple sclerosis Tuesday, March 28,2017

The drug, called Ocrevus, is approved for use against the most common form of MS – the relapsing-remitting type. It’s also the first drug specifically approved for primary progressive MS, a very aggressive form of the disease that affects 10 to 15 percent of MS patients.

There are no approved treatments now for primary progressive MS, which causes steadily worsening symptoms.

YOU CAN ALSO GO TO: MS News Update: FDA Approves First Drug to Treat Two Forms of MS – Please see MSAA’s online news article for more information. CLICK: mymsaa.org/news/fda-approves-ocrevus

While it’s not a cure, it’s one more weapon to use to help some of the 400,000 people with MS. In trials of 1,600 volunteers, it cut relapses in patients with the most common form of MS by nearly half compared with an older drug called Rebif.

Ocrevus, known generically as ocrelizumab, is a monoclonal antibody – an engineered immune system molecule. It won breakthrough designation from the FDA, which helped speed it through the approval process. Roche, which makes the drug, expects sales to top $4 billion a year.

It will be on the market within two weeks, and will cost $65,000 a year, the company said. That’s similar to the cost of Rebif, a 14-year-old drug now widely used to treat MS, although costs vary widely on all MS drugs.

Genentech says it deliberately set the price 20 percent below the current market average for an MS treatment. “The continually escalating prices of MS disease-modifying therapies are creating barriers to people with MS getting these life-changing medications,” the National MS Society said in a statement.

“Given every six months by IV infusion, Ocrevus represents a scientific advancement as a first-in-class therapy targeting B cells, a type of immune cell that plays a central role in the disease,” Genentech, a subsidiary of drug giant Roche, said in a statement.

[Read more…]

PAN and MSAA Support MS patients

Patient Access Network (PAN) Foundation and MSAA Launch Alliance to Support People Living with MS

The Patient Access Network (PAN) Foundation and Multiple Sclerosis Association of America (MSAA) today announced they are launching a new alliance to offer a broad range of support for people living with multiple sclerosis (MS). Working together, the PAN Foundation and MSAA will ensure that people living with multiple sclerosis have access to both financial and patient support services, providing them with the holistic support needed to best manage their disease.

“While our work at PAN centers on alleviating the financial hardship for patients and families who face diseases like multiple sclerosis, we recognize that financial assistance is only one piece of the puzzle,” said PAN President and CEO Dan Klein. “In partnering with MSAA, we can connect patients to additional services and resources, including educational programs, safety and mobility equipment, cooling products, MRI funding, and technology and tools that can help them achieve healthier outcomes.”

According to MSAA, multiple sclerosis is a disease of the central nervous system, which consists of the brain, optic nerves and spinal cord. MS damages or destroys the protective covering surrounding the nerves of the central nervous system and can potentially injure the nerves themselves. This damage causes reduced communication between the brain and nerve pathways. An estimated 2.5 million people worldwide are living with MS.

“We are excited that our new alliance with PAN will allow MSAA to expand the services we provide to more people living with MS,” said MSAA President and CEO Gina Ross Murdoch. “An MS diagnosis can be overwhelming not only for the individuals who are diagnosed, but also for their loved ones. Our partnership with PAN will mitigate some of the financial pressures so that patients can focus on how to best manage their disease.”

Patients who qualify for the PAN Foundation’s multiple sclerosis program are eligible to receive up to $8,000 per year in financial assistance. Eligible patients must be getting treatment for MS; must reside and receive treatment in the United States; must have Medicare health insurance; and the medication for which they seek assistance must be covered by Medicare and must treat the disease directly. In addition, patients must fall at or below 500 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1-866-316-7263, 9 a.m. to 5 p.m. Eastern Time, Monday through Friday. To learn more about PAN’s more than 50 disease-specific programs, visit panfoundation.org.

About the PAN Foundation

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $2.5 billion in financial assistance to more than 700,000 patients who would otherwise be unable to afford their medications. To learn more, visit panfoundation.org.

About MSAA

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization and leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a Helpline with trained specialists; award-winning publications, including MSAA’s magazine, The Motivator; MSAA’s nationally recognized website (at mymsaa.org), featuring award-winning educational videos and research updatesS.E.A.R.C.H.™ program to assist the MS community with learning about different treatment choices; a mobile phone app, My MS Manager™ (named one of the best multiple sclerosis iPhone & Android apps by Healthline.com); a resource database, My MS Resource Locator®; safety and mobility equipment distributioncooling accessories for heat-sensitive individuals; educational programs held across the country; MRI fundingMy MSAA Community, a peer-to-peer online support forum; a clinical trial search tool; and more. For additional information, please visit www.mymsaa.org or call (800) 532-7667.

 

MS Clinical Trial Information

Clinical Trials Word Cloud

CURRENT MS CLINIAL TRIALS IN THE LOS ANGELES AREA

CLICK ON THE GREEN LINK TO TAKE YOU DIRECTLY TO THE CLINICAL TRIAL INFORMATION!

Closest site: Less than 5 miles away

Status: Enrolling participants

Trial type: Interventional (Drug)The purpose of this study is to demonstrate the superiority of MD1003 over placebo in the disability of patients suffering from progressive… Read more

Closest site: USC Norris Comprehensive Cancer Center

Status: Enrolling participants

Trial type: Interventional (Drug)The purpose of this study is to provide confirmatory evidence of the safety and efficacy of two Dysport® (AbobotulinumtoxinA) doses (600 units… Read more

Closest site: CEDAR SINAI

Status: Not yet enrolling participants

Trial type: Interventional (Behavioral)This is an international, multicenter, randomized controlled trial of an internet-based CBT intervention for depression (Deprexis) conducted in… Read more

Closest site:  BURBANK

Status: Enrolling participants

Trial type: Observational (Drug)The purpose of this world-wide prospective parallel-cohort study in patients with relapsing forms of MS, either newly treated with fingolimod or… Read more

Looking for more options

New trials are being added all the time. Leave your email address and we will keep you updated as more options become available.   GO TO: https://antidote.me/match/study-page . If you click the colored word  STUDY – it will take you directly to the Antidote website where you can sign up for emails.

 

MSAA hosts “Ask me Anything” on March 29

MSAA Hosts “Ask Me Anything” During
MS Awareness Month  Do you have any questions about multiple sclerosis that you have been meaning to ask?  Here is your chance!  March 29, 2017 at 6:00 PM for an Ask Me Anything session with MS Expert, Dr. Barry Singer, on My MSAA Community.  ( just click on the colored link   to take you directly to our website)For one hour, Dr. Singer will answer your questions about MS posted in adesignated conversation thread on the Community.
WHAT: MS Awareness Month “Ask Me Anything” (AMA)
WHO: MSAA and Dr. Barry Singer, Director of The MS Center for Innovations in Care in St. Louis, MO
WHEN: Wednesday, March 29th, 6:00 – 7:00 PM EST
WHERE: My MSAA Community on HealthUnlocked
 

If you would like to ask a question during the Ask Me Anything session,                                                                  you will need to have or create a profile on My MSAA Community,                                                                    our peer-to-peer online community in which you can share your MS  journey, connect with others, and contribute to ongoing conversations – all from your phone, tablet, or computer.

 

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

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Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process