Is it time to check your Vitamin D levels

Vitamin D and MS

If you have MS….

QUESTION: “Should I have my blood levels of vitamin D checked?”

ANSWER: Probably, agree most doctors.

Click on the colored link below; it will take you directly to the article

Read more about vitamins herbs and minerals in MS. (pdf)

Published by the National MS Society: http://www.nationalmssociety.org

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code

NEW MS drug treatment Ocrevus approved from FDA

This information is from: NBC NEWS http://www.nbcnews.com

The Food and Drug Administration approved a new drug to treat multiple sclerosis Tuesday, March 28,2017

The drug, called Ocrevus, is approved for use against the most common form of MS – the relapsing-remitting type. It’s also the first drug specifically approved for primary progressive MS, a very aggressive form of the disease that affects 10 to 15 percent of MS patients.

There are no approved treatments now for primary progressive MS, which causes steadily worsening symptoms.

YOU CAN ALSO GO TO: MS News Update: FDA Approves First Drug to Treat Two Forms of MS – Please see MSAA’s online news article for more information. CLICK: mymsaa.org/news/fda-approves-ocrevus

While it’s not a cure, it’s one more weapon to use to help some of the 400,000 people with MS. In trials of 1,600 volunteers, it cut relapses in patients with the most common form of MS by nearly half compared with an older drug called Rebif.

Ocrevus, known generically as ocrelizumab, is a monoclonal antibody – an engineered immune system molecule. It won breakthrough designation from the FDA, which helped speed it through the approval process. Roche, which makes the drug, expects sales to top $4 billion a year.

It will be on the market within two weeks, and will cost $65,000 a year, the company said. That’s similar to the cost of Rebif, a 14-year-old drug now widely used to treat MS, although costs vary widely on all MS drugs.

Genentech says it deliberately set the price 20 percent below the current market average for an MS treatment. “The continually escalating prices of MS disease-modifying therapies are creating barriers to people with MS getting these life-changing medications,” the National MS Society said in a statement.

“Given every six months by IV infusion, Ocrevus represents a scientific advancement as a first-in-class therapy targeting B cells, a type of immune cell that plays a central role in the disease,” Genentech, a subsidiary of drug giant Roche, said in a statement.

[Read more…]

MSAA MRI access fund is fully reinstated

NEWS from MSAA MRI : Access Fund is Now Fully Reinstated

As a result of recent funding approvals, MSAA is thrilled to announce we have reinstated a critical coverage component to our popular MRI Access Fund. Individuals with Medicare and private health insurance who cannot meet their co-insurance balance are now eligible to apply for funding assistance for a cranial magnetic resonance imaging (MRI) exam through the program.

The MSAA MRI Access Fund assists individuals who are uninsured or under insured acquire a cranial MRI to help determine a diagnosis of multiple sclerosis or evaluate current MS disease progression.

The MRI Access Fund helps qualified applicants in two ways:  For people with no health insurance or a high unmet insurance deductible, the Fund will pay for an MRI through one of MSAA’s contracted imaging centers 

For individuals who cannot meet their MRI co-insurance balance, the program will cover the remaining cost, up to a specified maximum amount

Applicants must meet certain eligibility guidelines, complete the updated 2017 application and have not received an MSAA-funded MRI within the past 24 months. Also, MSAA does not reimburse for MRIs outside of this program. To learn more and apply, please visit the MRI Access Fund or call (800) 532-7667, ext. 120.

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

 

New hope for treament of MS

New hope for treatments of MS

 The passage of the 21st Century Cures Act will accelerate the discovery, development and delivery of life-changing treatments and improve the day-to-day lives of people with multiple sclerosis,” said Cyndi Zagieboylo, President and CEO of the National MS Society.

The bill includes a number of the MS movement’s top priorities:

  • Establishment of a data collection system to track the incidence and prevalence of neurological conditions, otherwise known as the Neuro Data bill;
  • $4.8 billion in new funding for the National Institutes of Health and $500 million for the Food and Drug Administration to bring new treatments to patients;
  • A six-month extension protecting access to power complex rehabilitation technology (CRT) wheelchair accessories, which are fundamental components of the chair such as tilt-and-recline systems and specialized seat cushions.

“I applaud Congress for creating a pathway for promising innovation through the establishment of a data collection system for neurological diseases; providing new funding for the NIH and the FDA; protecting access to CRT wheelchair accessories and more. This groundbreaking legislation truly brings us one step closer to ending MS,” said Zagieboylo.
“This will be a game-changer,” said MS District Activist Leader Frank Austin of Pennsylvania. Austin was diagnosed with MS in 1999 and was deeply involved in the passage of the bill. “I’ll continue to advocate over the next few years so the funding is appropriated and the bill is effectively implemented.”

Learn more:

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

Living with Multiple Sclerosis will weed people out of your life

living-well 

Living with Multiple Sclerosis will weed people out of your life

by Penelope Conway

One thing Multiple Sclerosis has done for me is weed out the people in my life that were only there for the ride, not the journey. So many times people proudly boast about the great numbers of people they know and pat themselves on the back because they have a sea of people surrounding them, but are those people really friends? I can almost guarantee you that a majority of them are what I would consider fair-weather friends.

I’ve noticed that people seem to be great at hanging around when they are getting some type of reward or kick-back for being your friend. You know, the free food, tickets, perks, support that you are able to send their way. But when those things dry up and you become the one in need of their continued help, they suddenly have other things more important to do.

Life has taught me a few things—I guess you could say the hard way—about people. I have learned what true friendship is…and is not.

A friend is not…

  • the long list of people in your High School year book.
  • the person who friended you on Facebook, followed you on Twitter or added you on Instagram.
  • someone who attended your birthday party, lives in the house next door or says hello to you in passing at the office.
  • the person who gives you a piece of gum or hangs out with you at the mall.
  • someone who waves at you from across the room, bags your groceries or invites you to their wedding.

[Read more…]

Mobility and Accessibility for MS Families and Patients

msphoto-mobility

Mobility & Accessibility for MS families and patients

Explore tools and strategies that will allow you to get where you want to go and do what you want to do — comfortably, safely, and with a limited drain on your energy.

The terms “mobility” and “accessibility” refer to being able to get where you want to go and do what you want to do — comfortably, safely, and with a limited drain on your energy.

Rehabilitation specialists can help you identify the tools and strategies that best meet your mobility and accessibility needs, keeping you active, productive and involved. Physical therapists, occupational therapists, speech/language pathologists, and physiatrists can help you restore and maintain function, manage symptoms, and identify appropriate tools and strategies to accomplish tasks and achieve your goals.

Staying Mobile can be accomplished through effective symptom management, the use of mobility aids, automobile adaptations and the use of assistance animals.

Increasing Accessibility often requires the adaptation of tools and devices at one’s home or work — and becoming an MS activist in the community.

Resources

The above information was viewed at : http://www.nationalmssociety.org/Living-Well-With-MS/Mobility-and-Accessibility

The NeuroCommunity Foundation:  As a non-profit foundation, we provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can easily donate at our website or mail us your gift. Our website is:  www.neurocommunity.org  

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 For information about MS, Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley, contact us here or call 818-885-8623 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

Financial assistance for MS families

financial-assistance

Financial Assistance Programs for MS 

If you are currently taking or considering starting on a multiple sclerosis (MS) medication, use the links below to review the various patient assistance programs that are available. If you are enrolled in a specific program, please check these sites periodically to ensure you have the most current information.

Ampyra (U.S.)

Company: Acorda Therapeutics

Usage in MS: Walking

Ampyra Patient Support Services
888-881-1918

Aubagio® (U.S.)

Company: Genzyme, A Sanofi Company

Usage in MS: Disease-Modifying Agent

MS One toOne   www.MSOnetoOne.com
1-855-MSOne2One (1-855-676-6326)

Avonex® (U.S. and Canada)

Company: Biogen

Usage in MS: Disease-Modifying Agent

Above MS, www.abovems.com or call 1-800-456-2255

Betaseron® (U.S. and Canada)

Company: Bayer Healthcare Pharmaceuticals, Inc.

Usage in MS: Disease-Modifying Agent

BETASERON PATIENT ASSISTANCE PROGRAM                           1-800-788-1467 www/betaseron.com/betaplus/affordability

BOTOX

Company: Allergan, Inc.

Usage in MS: Bladder Dysfunction|Spasticity in the Lower Limbs|Spasticity in the Upper Limbs

BOTOX Reimbursement Program
www.botox.com/

Copaxone® (U.S. and Canada)

Company: Teva Neuroscience

Usage in MS: Disease-Modifying Agent

Shared Solutions®                                                                                       1-800-887-8100     www.sharedsolutions.com

Extavia® (U.S. and Canada)

Company: Novartis Pharmaceuticals Corp.

Usage in MS: Disease-Modifying Agent

EXTAVIA GO PROGRAM
1-866-925-2333     http://www.extavia.com/

Gilenya (U.S.)

Company: Novartis Pharmaceuticals Corp.

Usage in MS: Disease-Modifying Agent

Gilenya Go Program
1-800-445-3692
www.gilenya.com/c/ms-pill/go-program

Glatopa [generic equivalent of Copaxone 20mg]

Company: Sandoz

Usage in MS: Disease-Modifying Agent

http://www.glatopa.com/glatopa_care/financial_support.shtml
1-855-GLATOPA (1-855-452-8672)

H.P. Acthar® (Repository Corticotropin) (U.S.)

Company: Questcor Pharmaceuticals, Inc.

Usage in MS: Acute Exacerbations

Web: www.actharmsrelapse.com for information about financial assistance     Phone: 1-888-435-2284

Lemtrada™

Usage in MS: Disease-Modifying Agent

Company: Genzyme

Usage in MS: Disease-Modifying Agent

MS One to One

1- 855-MSOne2One (1-855-676-6326)

www.msonetoone.com/
Novantrone (U.S. and Canada)

Usage in MS: Disease-Modifying Agent

None available at this time

Plegridy®

Company: Biogen

Usage in MS: Disease-Modifying Agent

Above MS
1-800-456-2255
www.abovems.com

Rebif®

Company: EMD Serono, Inc. and Pfizer, Inc.

Usage in MS: Disease-Modifying Agent

MS LifeLines   1-877-447-324    , www.mslifelines.com

Tecfidera® (U.S.) (teck-fi-DARE-ah)

Company: Biogen

Usage in MS: Disease-Modifying Agent

Above MS
1-800-456-2255
www.abovems.com

Tysabri ® (formerly called Antegren)

Company: Biogen

Usage in MS: Disease-Modifying Agent

Above MS
1-800-456-2255
www.abovems.com

Zinbryta

Usage in MS: Disease-Modifying Agent

Above MS
1-800-456-2255
www.abovems.com

 

Learn about the latest MS research

Image result for photo of research

Learn about the Latest MS Research

Each spring, the American Academy of Neurology (AAN) and the Consortium of Multiple Sclerosis Centers (CMSC) host their respective international conferences where thousands of multiple sclerosis healthcare professionals including neurologists, nurses, physical and occupational therapists and many other practitioners attend and present the latest MS research findings. In addition to attending these conferences, MSAA researches, reviews, and compiles a very comprehensive overview of the key MS highlights and abstracts from these meetings.
[Read more…]

FREE Booklet About MS

About MS

About MS

The Multiple Sclerosis Association of America (MSAA) is pleased to announce that the newly published About MS booklet is now available as both a printed and online publication. [Read more…]

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

Just Click Here and Shop

Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process