MS Support Groups Tarzana -Simi Valley-Santa Clarita

MS SUPPORT GROUPS

Here are 3 MS Support groups  you might not know about!

Cornerstone Church 

2080 Winifred St.  Simi Valley, CA 93063

11:00 AM – 1:00 PM    ongoing

First Monday of the Month

Please call before attending a meeting to confirm time and location.

Contact information

Dennis Zurcher     dczurcher@sbcglobal.net
805-584-2526

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Tarzana Community & Cultural Center
19130 Ventura Blvd.
Tarzana, CA 91356

Ongoing

9:00 AM – 12:00 PM

Second Saturday of the Month

Please call before attending a meeting to confirm time and location.

Contact information

Maria De Orellana
cyt1709@aol.com
818-370-8073


Saint Kateri Catholic Church  

22508 Copper Hill Dr.
Santa Clarita, CA 91350

6:30 PM – 8:00 PM

ongoing

Second Thursday of the Month

Please call before attending a meeting to confirm time and location.

Contact information

Eire Garcia, Group Leader
emlina6@cs.com
661-297-6887

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease,  MS and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

 

 

PAN and MSAA Support MS patients

Patient Access Network (PAN) Foundation and MSAA Launch Alliance to Support People Living with MS

The Patient Access Network (PAN) Foundation and Multiple Sclerosis Association of America (MSAA) today announced they are launching a new alliance to offer a broad range of support for people living with multiple sclerosis (MS). Working together, the PAN Foundation and MSAA will ensure that people living with multiple sclerosis have access to both financial and patient support services, providing them with the holistic support needed to best manage their disease.

“While our work at PAN centers on alleviating the financial hardship for patients and families who face diseases like multiple sclerosis, we recognize that financial assistance is only one piece of the puzzle,” said PAN President and CEO Dan Klein. “In partnering with MSAA, we can connect patients to additional services and resources, including educational programs, safety and mobility equipment, cooling products, MRI funding, and technology and tools that can help them achieve healthier outcomes.”

According to MSAA, multiple sclerosis is a disease of the central nervous system, which consists of the brain, optic nerves and spinal cord. MS damages or destroys the protective covering surrounding the nerves of the central nervous system and can potentially injure the nerves themselves. This damage causes reduced communication between the brain and nerve pathways. An estimated 2.5 million people worldwide are living with MS.

“We are excited that our new alliance with PAN will allow MSAA to expand the services we provide to more people living with MS,” said MSAA President and CEO Gina Ross Murdoch. “An MS diagnosis can be overwhelming not only for the individuals who are diagnosed, but also for their loved ones. Our partnership with PAN will mitigate some of the financial pressures so that patients can focus on how to best manage their disease.”

Patients who qualify for the PAN Foundation’s multiple sclerosis program are eligible to receive up to $8,000 per year in financial assistance. Eligible patients must be getting treatment for MS; must reside and receive treatment in the United States; must have Medicare health insurance; and the medication for which they seek assistance must be covered by Medicare and must treat the disease directly. In addition, patients must fall at or below 500 percent of the Federal Poverty Level.

Patients, or advocates and caregivers applying on their behalf, can apply for assistance using the PAN Foundation’s online patient portal (www.panapply.org), or by calling 1-866-316-7263, 9 a.m. to 5 p.m. Eastern Time, Monday through Friday. To learn more about PAN’s more than 50 disease-specific programs, visit panfoundation.org.

About the PAN Foundation

The PAN Foundation is an independent, nationwide 501(c)3 organization dedicated to providing help and hope to underinsured patients who are unable to afford the out-of-pocket expenses for their prescribed medications. Since 2004, PAN has provided over $2.5 billion in financial assistance to more than 700,000 patients who would otherwise be unable to afford their medications. To learn more, visit panfoundation.org.

About MSAA

The Multiple Sclerosis Association of America (MSAA) is a national nonprofit organization and leading resource for the entire MS community, improving lives today through vital services and support. MSAA provides free programs and services, such as: a Helpline with trained specialists; award-winning publications, including MSAA’s magazine, The Motivator; MSAA’s nationally recognized website (at mymsaa.org), featuring award-winning educational videos and research updatesS.E.A.R.C.H.™ program to assist the MS community with learning about different treatment choices; a mobile phone app, My MS Manager™ (named one of the best multiple sclerosis iPhone & Android apps by Healthline.com); a resource database, My MS Resource Locator®; safety and mobility equipment distributioncooling accessories for heat-sensitive individuals; educational programs held across the country; MRI fundingMy MSAA Community, a peer-to-peer online support forum; a clinical trial search tool; and more. For additional information, please visit www.mymsaa.org or call (800) 532-7667.

 

MSAA hosts “Ask me Anything” on March 29

MSAA Hosts “Ask Me Anything” During
MS Awareness Month  Do you have any questions about multiple sclerosis that you have been meaning to ask?  Here is your chance!  March 29, 2017 at 6:00 PM for an Ask Me Anything session with MS Expert, Dr. Barry Singer, on My MSAA Community.  ( just click on the colored link   to take you directly to our website)For one hour, Dr. Singer will answer your questions about MS posted in adesignated conversation thread on the Community.
WHAT: MS Awareness Month “Ask Me Anything” (AMA)
WHO: MSAA and Dr. Barry Singer, Director of The MS Center for Innovations in Care in St. Louis, MO
WHEN: Wednesday, March 29th, 6:00 – 7:00 PM EST
WHERE: My MSAA Community on HealthUnlocked
 

If you would like to ask a question during the Ask Me Anything session,                                                                  you will need to have or create a profile on My MSAA Community,                                                                    our peer-to-peer online community in which you can share your MS  journey, connect with others, and contribute to ongoing conversations – all from your phone, tablet, or computer.

 

Take Care to Give Care

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“Take Care to Give Care

The first rule of taking care of others: take care of yourself first. Caregiving can be a rewarding experience, but it is also physically and emotionally demanding. The stress of dealing with caregiving responsibilities leads to a higher risk of health issues among the Nation’s 90 million family caregivers. So as a family caregiver, remember to pay attention to your own physical and mental wellness, and get proper rest and nutrition. Only by taking care of yourself can you be strong enough to take care of your loved one. You really do need to “take care to give care!”

[Read more…]

MSAA Community and HealthUnlock Partnership

Something new : MSAA and HEALTH UNLOCK  join efforts to create an online forum!

Network, Society, Social, Community, Cooperation

 MSAA is pleased to announce that, in partnership with  HealthUnlocked, we have launched a new peer-to-peer online community called My MSAA Community! This free online forum is a safe place for individuals who have been affected by MS, whether they have been diagnosed or are a care partner, to share their stories and find important information.

In this community you will be able to:

· Post a question and get answers from members in the forum

· Share your MS journey and connect with others

· Contribute to ongoing conversations

Follow or join the community (hosted on HealthUnlocked) to find support or contribute to the conversation.

You can help us create a thriving community with information, support, and experience to empower and change the lives of others!

HealthUnlocked is a social network for health. On HealthUnlocked you can interact and talk directly to people with the same condition as you, as well as receive useful recommendations through the HealthUnlocked learning platform.

Click here : My MSAA Community  for more information about this new partnership!

The NeuroCommunity Foundation is here for you:
For information about Parkinson’s disease and movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley, contact us here or call 818-885-8623 to speak with Jan D. Somers, Education Director, Parkinson’s and Movement Disorders Information Center at CARE, The NeuroCommunity Foundation.

 

 

 

 

 

 

 

 

MS Support Groups Simi Valley, T.O, Santa Clarita, Downey and Lakewood

Thanks to support group co-leader Ken Thurman for sending us the latest updates for Simi Valley, Thousand Oaks, and Santa Clarita MS support groups. Please provide your group information and we’ll post it here.

While attending a support group may not be a good fit for everyone, most people find it helpful to talk with others who are in the same situation. Benefits of participating in support groups may include:

– Feeling less lonely, isolated or judged
– Gaining a sense of empowerment and control
– Improving your coping skills and sense of adjustment
– Talking openly and honestly about your feelings
– Reducing distress, depression, anxiety or fatigue
– Developing a clearer understanding of what to expect with your situation
– Getting practical advice or information about treatment options
– Comparing notes about resources, such as doctors and alternative options

MS Support Groups

Simi Valley

When: every first Monday of the month from 11 am to 1 pm

Where: Cornerstone Community Church, 2080 Winifred St, Simi Valley, CA 93063 – in class room #10

Thousand Oaks

When: every second Monday of the month from 9:30 am to 11:30 am

Where: Goebel Senior Adult Center, 1385 E Janss Rd, Thousand Oaks, CA 91362

Santa Clarita

When: every second Thursday of the month from 6:30 pm to 8 pm

Where:Saint Kateri Tekakwitha Catholic Church, 22508 Copper Hill Dr, Santa Clarita, CA 91350

 Downey

When: Every Thursday – except when temperatures are over 85 degrees

10:00 AM – 2:15 PM

Where: 7601 W. Imperial HWY. ,
Bldg. 900. Room 10
Downey, CA 90242

Contact person: Staci  (213) 343-9962

Long Beach/ Lakewood

MS  Support Group meetings, 3rd Sundays, except July & August, 1:00-3:00 pm, Mae Boyar Park Activity Room, 6701 E. Del Amo Blvd., Lakewood. Contact: Fran Itkoff, 562/925-4405

The NeuroCommunity Foundation is here for you:

For information about multiple sclerosis, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley, contact us here or call 818-885-8623 to speak with Jan D. Somers , Education Director, The NeuroCommunity Foundation.

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

Just Click Here and Shop

Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process