Clinical Study-Parkinsons Disease Dementia Study

Parkinson’s Disease Dementia (PDD) study

 ClinicalTrials.gov is the official US government website for all FDA approved medical trials for Parkinson’s Disease, Stroke, Dementia, Multiple Sclerosis, Alzheimer’s Disease, Traumatic Brain Injury and all other medical conditions.  It is available for anyone to look up and retrieve contact information for the investigator site(s) or study sponsor to contact if interested in participating in research studies.
The following  clinical trial information is being provided for informational purposes only and The NeuroCommunity Foundation is not responsible for the products under investigation or the studies themselves in any way.
For those interested in participating in the evaluation of a new product that Altura Pharmaceuticals is developing that is hoped to lessen the impact of Parkinson’s Disease Dementia (PDD) by improving wakefulness, cognitive and motor function, below is the  contact information .
  • Telephone contact: 866-446-4135
  • Email (confidential): studysite@alturastudies.com

PD Education from Home January 2018

January 2018 PD EDUCATION FROM HOME

PD Expert Briefing    

Topic : Freezing or sweating falls when walking with Parkinson’s Disease

Tuesday, January. 16, 2018, 10 am  – 11 am  PST 

Fay B. Horak, Ph.D., P.T.

To Register: Copy and paste the following website, into your server

http://event.netbriefings.com/event/pdeb/Live/falls2/register.html


LSVT Webinar

Wednesday,January 24 2018

 11am  – 12 noon

Keep it BIG! Tune Ups and other Post-Discharge Recommendations in LSVT BIG®

How do you maintain the BIG gains you made in LSVT BIG treatment and stay motivated once treatment has concluded? Join LSVT BIG Faculty to hear valuable insights on post-discharge recommendations following LSVT BIG, including continued daily homework practice, tune-up sessions and BIG for LIFE® maintenance groups. Opportunities will be provided for you to ask questions during the webinar through voice and chat options.

RegistrationLink: https://attendee.gotowebinar.com/register/6611462755464165121

 

MJ Fox,  and PD Telephone at home webinar information not available at this time.


The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code. 

Mailing Address: 

The NeuroCommunity Foundation

 23705 Vanowen St. # 216                          

West Hills, CA 91307

 

 


January News and PD Support Group Listings

Image result for photo of new year 2018

Happy New Year from THE NEUROCOMMUNITY FOUNDATION!

The NeuroCommunity Foundation:

Phone: 818-745-5051

We hope everyone had a safe and peaceful holiday season.

May the coming year bring good health and happiness to all!

We also hope we can count on your donations to continue our efforts in providing YOU personalized Information and Resources, Education, Symposiums, Up-to-date Research & Clinical trials, Advocacy, Wellness and our PD Support groups! Donations accepted online or can be mailed to us.

At the HELPFUL INFORMATION tab, at our website,

you can read about MEDICARE CHANGES for 2018 and New Medicare cards

CLICK HERE:  January PD SUPPORT GROUP LISTINGS 

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Meet the January guest speakers by Clicking on their name !      

 Allison Smith  Parkinson’s in Balance ( Live Wires Burbank)      

Amy CarlsonEvery Victory Counts, Davis Phinney Foundation  (Santa Barbara)     

 Danica Tolentino CSUN Research- Gait Study  (Simi Valley)

 Dennis Cante Dance helps PD -Even the Tango!  (Claremont) 

 Holly Sacks  – Mindfullness for PD   (Sherman Oaks) 

 Wayne Pickerell – Clinical Research and Trials  in PD  (Ventura)

Karol Ann Sample – Assisted Home Health & Hospice What and Who is Hospice?  Everything you need to know. (Camarillo)     

 

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PD Education Events —  Pasadena – Advances in DBS    January 9                         Free Lecture

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New articles on our website: 

–Sugar and the Brain,

–MS Research progress in 2017,

–Autoimmunity and PD ,

–Caregiver Reminders  for 2018,

–Free Caregiver workshops in Glendale,

–Medicare changes in 2018 and Be Inspired- new thoughts for 2018! 

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Breaking News: CSUN  Clinical Research  GAIT and PD  Sign up to participate in this  study.

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PD   Educational Webinars

-Freezing or Sweating Falls When Walking with Parkinson’s Disease 

Additional educational webinar information was not available at this time. Please check back later.

MAILING ADDRESS:

The NeuroCommunity Foundation  

32705 Vanowen St.  # 216  

West Hills, CA  91307

TELEPHONE: (818.745.5051)

 

Lecture on new Advances in DBS Pasadena January 2018

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Presentation on New Advances in DBS treatments

January 9, 2018

Deep brain stimulation (DBS) therapy has been proven over the past 20 years* to be an effective treatment option for symptoms of Parkinson’s disease. The latest advancements to DBS offer innovations in the way the therapy is delivered and how it is controlled. Attend this free informational seminar to learn more about DBS therapy, including the benefits and risks of this therapy. Call 323-326-4158 or email jsykes@sjm.com to reserve your spot.

Igor Fineman, MD, FACS
Jennifer Birch, RN, MSN, ACNP-BC
Raymond Neurosurgery & Spine
Yvette Yeung, MD | DaVita Healthcare Partners
Tyler Cheung, MD | Huntington Hospital

January 9, 2018 | 6:00 p.m. – 8:30 p.m.
South Pasadena Public Library Community Room
1115 El Centro Ave
Pasadena, CA 91030

Autoimmunity and Parkinsons Disease

Researchers have found the first direct evidence that autoimmunity — in which the immune system attacks the body’s own tissues — plays a role in Parkinson’s disease, the neurodegenerative movement disorder. The findings raise the possibility that the death of neurons in Parkinson’s could be prevented by therapies that dampen the immune response.

The study, led by scientists at Columbia University Medical Center (CUMC) and the La Jolla Institute for Allergy and Immunology, was published today in Nature.

“The idea that a malfunctioning immune system contributes to Parkinson’s dates back almost 100 years,” said study co-leader David Sulzer, PhD, professor of neurobiology (in psychiatry, neurology and pharmacology) at CUMC. “But until now, no one has been able to connect the dots. Our findings show that two fragments of alpha-synuclein, a protein that accumulates in the brain cells of people with Parkinson’s, can activate the T cells involved in autoimmune attacks.

“It remains to be seen whether the immune response to alpha-synuclein is an initial cause of Parkinson’s, or if it contributes to neuronal death and worsening symptoms after the onset of the disease,” said study co-leader Alessandro Sette, Dr. Biol. Sci., professor in the Center for Infectious Disease at La Jolla Institute for Allergy and Immunology in La Jolla, Calif. “These findings, however, could provide a much-needed diagnostic test for Parkinson’s disease, and could help us to identify individuals at risk or in the early stages of the disease.”

[Read more…]

Join the online clinical study

Have you heard of the NEW  online study that empowers people with PD to partner  with researchers and accelerate the development of break-though treatments?

The MJ Fox foundation has a new program called FOX INSIGHT.

It’s open to anyone with or without PD.

To learn more about it, go to: https://foxinsight.michaeljfox.org

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 Mailing Address: 

The NeuroCommunity Foundation

 23705 Vanowen St. # 216

 West Hills, CA 91307

 

You can be the unexpected artist with PD

CAN YOU IMAGINE…..

 Chip Colley was an outdoorsman, not an artist. “I had friends who were artists, but I couldn’t paint at all,” he says.

Colley grew up fishing with his father on the Escambia Bay near his hometown of Pensacola, Florida. When his son, Zachary, was old enough, Colley introduced him to the timeless father-son tradition of pre-dawn angling.

And, when he was first diagnosed with PD, Colley fled to the cypress bog behind his house to reflect on this new, largely unwelcome phase of his life.

Early on in the disease, he was hit hard by bouts of insomnia that would last until three o’clock in the morning. Not a huge fan of television (“It stresses me out.”), he struggled to occupy these sleepless nights.

During the day, Colley frequented the three art galleries in town. He enjoyed perusing the creations of the professional artists until one day, one of those artists came up to him and asked, “Why don’t you try to paint something?”

He initially dismissed the idea outright. “My hands were always shaking so hard that I couldn’t even write my own name,” he says.

However, during one of the endless, empty nights, Colley made a decision that would forever alter his outlook on his disease. He grabbed a sheet of paper and some pencils and began to draw.

To his surprise, the drawings turned out “pretty good.” Colley began to expand his scope, digging through boxes of his children’s old art supplies. “I started painting with anything I could get my hands on,” he says.

He had questions about his newfound penchant for portraiture, but continued to allow his creative juices to flow. The next time Colley went to his neurologist for a checkup, he presented the doctor with a stack of paintings and asked, “What’s this about?”

The physician was impressed, but not surprised by Colley’s prowess. He suggested Colley enroll in a study about PD and creativity being conducted by the University of Florida. “We walked in and they just handed us a bag of art supplies and told us to do our thing.”

Colley’s art has gradually gotten better. He prefers painting and sculpting, sometimes combining the two to create paintings with embossed surfaces. “It’s been great. I’ve met so many people since I started doing art,” he says. “When you’re focused on a project, you tend not to think about your physical problems. It just takes you away.”

His advice for fellow sufferers: “Pick up a paintbrush, dance, sing. Do anything you want, but do not just sit there. Enjoy your life. I’m considered an artist now. I would never have dreamed it in a million years.”

 

PD Education opportunities from your home

DECEMBER 2017

PD EDUCATION FROM HOME

MJ Fox- Third Thursday Webinar

Title: 2017 Parkinson’s Research Year in Review

Date: Thursday, December 14, 2017

Time: 9 am – 10 : 30 am ( PST)     Duration:  1 hour  30 minutes

TO REGISTER: Copy and paste the link below:                                                                                                                                                                                                                                                    LINK: www.michaeljfox.org/understanding-parkinsons/webinar-registration.

In this extended 90 minute webinar, it covers advances in the understanding of PD and development of new treatments.

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Title: Treating the Non-Motor Symptoms of Parkinson Disease with LSVT BIG® and LSVT LOUD® 

Date: Wednesday, December 6, 2017
Time:  11 AM – 12 noon

TO REGISTER:  copy and paste the link below LINK: https://attendee.gotowebinar.com/register/3058086365585295617

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PD Telephone at home

 TOPIC: Hallucinations  and Delusions in PD 

Speaker: Caitlan Mulligan, MD Movement Disorder Fellow

Date: December 11, 2017,

 Time: 10:00 am – 11:00 am (PST)

Call:  1-800-767-1750  and enter the code: 54321#   (call in about 3 min prior to the hour) Webinars are 2nd Tuesday of each month


PD Expert Briefing    

No Webinar in December

———————————————————

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

 The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

Mailing Address:

The NeuroCommunity Foundation   23705 Vanowen St. # 216   West Hills, CA 91307

 

The simple joys of holidays

Make this holiday season a simple one, filled with smiles, hugs and time for yourself and loved ones. Remember, you are special.. there is only one person like you! 

 

 

The importance of TIME in your life

SOME THOUGHTS DURING THIS HOLIDAY SEASON

 

Value your time

Once a moment is gone, you cannot get it back. Spend each one wisely, with intention, with purpose, with meaning.

Your time is more precious than just about anything else you have. For it is with time that you create, access and experience all else.

Don’t let yourself be tricked into providing it too cheaply. What appears to be a bargain in terms of money can end up imposing a terrible cost on your irreplaceable time.

Do you constantly feel you have too little time? That’s a strong indication you’re not placing a high enough value on the time you have.

Each day comes to you with plenty of time for rich, creative, meaningful living. Hold every moment to a high standard, and insist on spending them all engaged in what truly matters.

Time is your opportunity to fill life with great treasure. Make good and meaningful use of every single minute.
— Ralph Marston

 

 

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

Just Click Here and Shop

Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process