Sunday April 15th Living Artistically with Parkinson’s

Join the Parkinson Community of Los Angeles (PCLA) for Living Artistically with Parkinson’s Art Show! The inaugural fundraiser features works from artists with Parkinson’s disease. All art will be available for sale with the proceeds benefiting the artists and PCLA.

This Sunday April 15th from 12-4 PM. $45/person includes Luncheon Buffet & Valet Parking. Click on the link below for tickets!

https://parkinsonscommunityla.org/calendar/living-artistically-parkinsons-art-show/

 

 

 

Expert Physicians To Speak in Ventura Wednesday April 11th

Ventura Parkinson’s Disease Support Group

Join us Wednesday April 11th from 1PM to 3PM 

Lexington Assisted Living

5440 Ralston Street, Ventura

 
The Ventura Parkinson’s Disease Support Group is pleased to announce that Dr. Neda Heidari and Dr. Indu Subramanian will be our guests at our meeting on Wednesday, April 11, 2018 from 1:00 to 3:00 pm at The Lexington Assisted Living, 5440 Ralston St, Ventura. These expert doctors will answer our questions and endeavor to help us understand more about how to live with and treat Parkinson’s Disease.

  Neda Heidari MD

Board-Certified Neurologist and Neurophysiologist. She graduated with honors in 2001 from Teheran University Medical Science and completed her fellowship in Neuromuscular Disorder and Epilepsy at USC Keck School of Medicine. She is a member of the American Academy of Neurology and American Neuromuscular Association. Dr. Heidari has been in practice in Ventura County for over a decade and treats various neurological disorders including Movement Disorders, Parkinson’s Disease, Multiple Sclerosis, Stroke, Epilepsy, Dementia, Headaches, Neuropathy and other neurological diseases. She performs a variety of in-office tests to help diagnose neurological diseases and Neuropathy. Dr. Heidari is also certified to make adjustments for patients who have had DBS (Deep Brain Stimulator) surgery for their tremors, Parkinson’s and/or Dystonia. She believes in educating patients about their disease and helping them understand the pathology and course of the disease. Dr. Heidari treats neurological conditions according to the newest, up-to-date practice guidelines and advance technologies. She is dedicated to making her patients and their caregivers feel better and live a happier and a healthier lifestyle.

 Dr. Indu Subramanian

Dr. Subramanian received her medical degree in 1996 from the University of Toronto, Canada. She interned for a year in San Diego Mercy Hospital before joining the UCLA Neurology Residency Program which she completed in 2000. Dr. Subramanian received her Movement Disorder Fellowship training at UCLA Movement Disorders, UCLA School of Medicine from 2000-2002.  Upon completing her fellowship training, Dr. Subramanian has stayed on as Associate Clinical Professor at UCLA . She was on the American Board of Psychiatry and Neurology in 2001 and 2011. Dr. Subramanian established the movement disorder clinic at the West Los Angeles Veterans Administration and has recently assumed the position of the Director of the South West PDRECC (Parkinson Disease Research, Education and Clinical Care). She has developed an interest in complementary and alternative medicine with a special interest in Yoga and Mindfulness. She underwent a 200 hour yoga teacher training in 2015 and is currently studying to be a mindfulness instructor to teach MBSR. She is designing a yoga teacher-training program for yoga instructors who are interested in working with Parkinson’s Disease patients. 

The Ventura Parkinson’s Disease Support Group welcomes our Members and Care-Partners, Visitors and New Friends who find themselves in this battle with Parkinson’s Disease.

There is a drop-off/loading and unloading driveway in the front of their building and extra parking is graciously available across the street in the Baptist Church parking lot.  Check in at the front desk for directions to the 3rd floor and sign-in at the meeting so we can keep in touch with you.                      

 For more information call Patty at 805-766-6070

Reservations Not required

We are an independent and volunteer-organized group not affiliated with or a part of any other organization or group. 

Thanks to the generosity of the Lexington Assisted Living, we are able to have our meetings every second Wednesday of the month from 1-3 PM.

Dr. Pouratian Friday April 6th at Westlake Parkinson’s Support Group

    Westlake Parkinson’s Support Group
    Westminster Presbyterian Church
    32111 Watergate Rd, Westlake Village

 

                                                                  9:00 am Exercise with Josh from Neuroboxing 

OR

9:00 am Caregivers Meeting

                                                                                                       

10:15 am Dr. Nader Pouratian

“The PD Brain and What We Have Learned from Patients Undergoing DBS Surgery”

 

Dr. Pouratian, MD, PhD, FAANS FACS

           Associate Professor and Vice Chair of Clinical Affairs, UCLA Neurosurgery, Neurosurgical Brain Mapping & Restoration

Dr. Pouratian’s primary neurosurgical interest is in surgeries that preserve and restore function to patients. In order to perform these surgeries, Dr. Pouratian uses advanced neuroimaging and brain & nerve mapping techniques. His research focuses on further developing these mapping tools in order to expand the surgical indications and to develop new therapies for functional preservation and restoration. He is particularly interested in studying brain-computer interfaces to help patients with severe motor and language disabilities.

                                   

Contact Beverly van Skoyk for more info:

beverly.vanscoyk@gmail.com

805-379-3823

 

 

Santa Barbara hosting Shake the Shakes program

UCLA Departments of Neurology and Neurosurgery invite you to a free Seminar on Sunday, February 25th at the Elks Lodge SB.  Registration begins at 9 am. Registration must be done no later than Feb. 21, 2018

 UCLA movement-disorders specialists Nader Pouratian, MD,  PhD, and   Ausaf A. Bari, MD, PhD, will discuss treatment options including medicines, surgery (deep brain stimulation) and noninvasive therapies to cope with tremors. 

The program will also include guest speakers and local movement disorders specialists Erin Presant, DO, and Sarah Kempe-Mehl, MD. 

 Please see the attached flyer below for more information.

  CLICK on the colored link for information:Shake the Shakes program in Santa Barbara.

PD Education events from the comfort of your home

PD EDUCATION FROM HOME

MJ Fox Third Thursday Webinar  

Thursday, February 15, 2018   TIME:  9 a.m. PT

TOPIC: Depression and Anxiety in Parkinson’s disease

We’re replaying a popular webinar on depression and anxiety. We’ll discuss the Parkinson’s symptoms of depression and anxiety, and how to treat and manage this aspect of life with the disease.

To register, go directly to: www.michaeljfox.org/page.html?hot-topics-webinar-series

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PD Expert Briefing

Tuesday, February. 27,  2018   10 to 11 a.m.   TOPIC: Parkinson’s disease Psychosis: Hallucinations, Delusions and Paranoia 
Host: Christopher G. Goetz, M.D.

Copy and paste into your internet server: http://parkinson.org/Living-with-Parkinsons/Resources-and-Support/PD-ExpertBriefings-Webinars Registration at their website.

What if I do not have access to a computer?

Yes, participants without computers may access both live and recorded PD ExpertBriefings. To access a live PD ExpertBriefing, on the day of the live event, dial (888) 272-8710 and input passcode 6323567# when prompted (this phone number is separate from the PDF HelpLine).

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LSVT

DATE: Wednesday, February 21,2018    Time: 11:00 PM – 12 Noon                                                           ( Pacific Standard Time)
TOPIC: How do you maintain the LOUD gains you made in LSVT LOUD treatment and stay motivated once treatment has concluded?

Join LSVT LOUD Faculty to hear valuable insights on post-discharge recommendations following LSVT LOUD, including continued daily homework practice, tune-up sessions and LOUD for LIFE® maintenance groups. Opportunities will be provided for you to ask questions during the webinar through voice and chat options.  In your internet server, copy, paste the following https://attendee.gotowebinar.com/register/1338814124016110850  in order to register.

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 PD Telephone at home:  Information unavailable at the present time.

PD Education from Home January 2018

January 2018 PD EDUCATION FROM HOME

PD Expert Briefing    

Topic : Freezing or sweating falls when walking with Parkinson’s Disease

Tuesday, January. 16, 2018, 10 am  – 11 am  PST 

Fay B. Horak, Ph.D., P.T.

To Register: Copy and paste the following website, into your server

http://event.netbriefings.com/event/pdeb/Live/falls2/register.html


LSVT Webinar

Wednesday,January 24 2018

 11am  – 12 noon

Keep it BIG! Tune Ups and other Post-Discharge Recommendations in LSVT BIG®

How do you maintain the BIG gains you made in LSVT BIG treatment and stay motivated once treatment has concluded? Join LSVT BIG Faculty to hear valuable insights on post-discharge recommendations following LSVT BIG, including continued daily homework practice, tune-up sessions and BIG for LIFE® maintenance groups. Opportunities will be provided for you to ask questions during the webinar through voice and chat options.

RegistrationLink: https://attendee.gotowebinar.com/register/6611462755464165121

 

MJ Fox,  and PD Telephone at home webinar information not available at this time.


The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code. 

Mailing Address: 

The NeuroCommunity Foundation

 23705 Vanowen St. # 216                          

West Hills, CA 91307

 

 


Lecture on new Advances in DBS Pasadena January 2018

Related image

Presentation on New Advances in DBS treatments

January 9, 2018

Deep brain stimulation (DBS) therapy has been proven over the past 20 years* to be an effective treatment option for symptoms of Parkinson’s disease. The latest advancements to DBS offer innovations in the way the therapy is delivered and how it is controlled. Attend this free informational seminar to learn more about DBS therapy, including the benefits and risks of this therapy. Call 323-326-4158 or email jsykes@sjm.com to reserve your spot.

Igor Fineman, MD, FACS
Jennifer Birch, RN, MSN, ACNP-BC
Raymond Neurosurgery & Spine
Yvette Yeung, MD | DaVita Healthcare Partners
Tyler Cheung, MD | Huntington Hospital

January 9, 2018 | 6:00 p.m. – 8:30 p.m.
South Pasadena Public Library Community Room
1115 El Centro Ave
Pasadena, CA 91030

PD Education opportunities from your home

DECEMBER 2017

PD EDUCATION FROM HOME

MJ Fox- Third Thursday Webinar

Title: 2017 Parkinson’s Research Year in Review

Date: Thursday, December 14, 2017

Time: 9 am – 10 : 30 am ( PST)     Duration:  1 hour  30 minutes

TO REGISTER: Copy and paste the link below:                                                                                                                                                                                                                                                    LINK: www.michaeljfox.org/understanding-parkinsons/webinar-registration.

In this extended 90 minute webinar, it covers advances in the understanding of PD and development of new treatments.

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Title: Treating the Non-Motor Symptoms of Parkinson Disease with LSVT BIG® and LSVT LOUD® 

Date: Wednesday, December 6, 2017
Time:  11 AM – 12 noon

TO REGISTER:  copy and paste the link below LINK: https://attendee.gotowebinar.com/register/3058086365585295617

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PD Telephone at home

 TOPIC: Hallucinations  and Delusions in PD 

Speaker: Caitlan Mulligan, MD Movement Disorder Fellow

Date: December 11, 2017,

 Time: 10:00 am – 11:00 am (PST)

Call:  1-800-767-1750  and enter the code: 54321#   (call in about 3 min prior to the hour) Webinars are 2nd Tuesday of each month


PD Expert Briefing    

No Webinar in December

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The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, MSW, LCSW, BCD, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

 The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

Mailing Address:

The NeuroCommunity Foundation   23705 Vanowen St. # 216   West Hills, CA 91307

 

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

Just Click Here and Shop

Northridge Foundation For Neurological Research & Education

Smile with Back to School shopping

Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process