Expert Physicians To Speak in Ventura Wednesday April 11th

Ventura Parkinson’s Disease Support Group

Join us Wednesday April 11th from 1PM to 3PM 

Lexington Assisted Living

5440 Ralston Street, Ventura

 
The Ventura Parkinson’s Disease Support Group is pleased to announce that Dr. Neda Heidari and Dr. Indu Subramanian will be our guests at our meeting on Wednesday, April 11, 2018 from 1:00 to 3:00 pm at The Lexington Assisted Living, 5440 Ralston St, Ventura. These expert doctors will answer our questions and endeavor to help us understand more about how to live with and treat Parkinson’s Disease.

  Neda Heidari MD

Board-Certified Neurologist and Neurophysiologist. She graduated with honors in 2001 from Teheran University Medical Science and completed her fellowship in Neuromuscular Disorder and Epilepsy at USC Keck School of Medicine. She is a member of the American Academy of Neurology and American Neuromuscular Association. Dr. Heidari has been in practice in Ventura County for over a decade and treats various neurological disorders including Movement Disorders, Parkinson’s Disease, Multiple Sclerosis, Stroke, Epilepsy, Dementia, Headaches, Neuropathy and other neurological diseases. She performs a variety of in-office tests to help diagnose neurological diseases and Neuropathy. Dr. Heidari is also certified to make adjustments for patients who have had DBS (Deep Brain Stimulator) surgery for their tremors, Parkinson’s and/or Dystonia. She believes in educating patients about their disease and helping them understand the pathology and course of the disease. Dr. Heidari treats neurological conditions according to the newest, up-to-date practice guidelines and advance technologies. She is dedicated to making her patients and their caregivers feel better and live a happier and a healthier lifestyle.

 Dr. Indu Subramanian

Dr. Subramanian received her medical degree in 1996 from the University of Toronto, Canada. She interned for a year in San Diego Mercy Hospital before joining the UCLA Neurology Residency Program which she completed in 2000. Dr. Subramanian received her Movement Disorder Fellowship training at UCLA Movement Disorders, UCLA School of Medicine from 2000-2002.  Upon completing her fellowship training, Dr. Subramanian has stayed on as Associate Clinical Professor at UCLA . She was on the American Board of Psychiatry and Neurology in 2001 and 2011. Dr. Subramanian established the movement disorder clinic at the West Los Angeles Veterans Administration and has recently assumed the position of the Director of the South West PDRECC (Parkinson Disease Research, Education and Clinical Care). She has developed an interest in complementary and alternative medicine with a special interest in Yoga and Mindfulness. She underwent a 200 hour yoga teacher training in 2015 and is currently studying to be a mindfulness instructor to teach MBSR. She is designing a yoga teacher-training program for yoga instructors who are interested in working with Parkinson’s Disease patients. 

The Ventura Parkinson’s Disease Support Group welcomes our Members and Care-Partners, Visitors and New Friends who find themselves in this battle with Parkinson’s Disease.

There is a drop-off/loading and unloading driveway in the front of their building and extra parking is graciously available across the street in the Baptist Church parking lot.  Check in at the front desk for directions to the 3rd floor and sign-in at the meeting so we can keep in touch with you.                      

 For more information call Patty at 805-766-6070

Reservations Not required

We are an independent and volunteer-organized group not affiliated with or a part of any other organization or group. 

Thanks to the generosity of the Lexington Assisted Living, we are able to have our meetings every second Wednesday of the month from 1-3 PM.

Dr. Pouratian Friday April 6th at Westlake Parkinson’s Support Group

    Westlake Parkinson’s Support Group
    Westminster Presbyterian Church
    32111 Watergate Rd, Westlake Village

 

                                                                  9:00 am Exercise with Josh from Neuroboxing 

OR

9:00 am Caregivers Meeting

                                                                                                       

10:15 am Dr. Nader Pouratian

“The PD Brain and What We Have Learned from Patients Undergoing DBS Surgery”

 

Dr. Pouratian, MD, PhD, FAANS FACS

           Associate Professor and Vice Chair of Clinical Affairs, UCLA Neurosurgery, Neurosurgical Brain Mapping & Restoration

Dr. Pouratian’s primary neurosurgical interest is in surgeries that preserve and restore function to patients. In order to perform these surgeries, Dr. Pouratian uses advanced neuroimaging and brain & nerve mapping techniques. His research focuses on further developing these mapping tools in order to expand the surgical indications and to develop new therapies for functional preservation and restoration. He is particularly interested in studying brain-computer interfaces to help patients with severe motor and language disabilities.

                                   

Contact Beverly van Skoyk for more info:

beverly.vanscoyk@gmail.com

805-379-3823

 

 

February 2018 News and PD Support Group Listings

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PD SUPPORT GROUP LISTINGS

CLICK on this colored link:  FEBRUARY 2018 Support Group Listing

Read about guest speakers by clicking on their name ( Green) 

David Russak  PT, DPT, BCIS, CSC- “What is Parkinson’s disease and how do I fight it” (Westlake)   

Nicole Palman Speech Therapist, “The Benefits of Speech Therapy in Parkinson’s.”  (Live Wires DBS Burbank)

 Ronald Ziman, MD , “Ask the Doctor- Q & A ( Burbank, Sherman Oaks and Simi Valley)

Andres Bratt-Leal, Ph.D. “Dopamine Neuron Replacement Therapy for PD” (Santa Barbara)

Lauren Williamson, Community Development Director, Orange County Parkinson’s Foundation. (Claremont)

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JOIN THE DAVIS PHINNEY FOUNDATION and their regional partners for a day of information and inspiration.

FREE educational event in Pasadena, August 2017 

FOR MORE EVENT DETAILS visit dpf.org/vs-los-angeles or                                        call 1-866-358-0285

WHAT The Victory Summit® is a free educational event with information and tools that people with Parkinson’s can use to live well today.

WHEN Friday Aug 10, 2018 10:00 am – 4:00 pm Complimentary lunch served.

WHERE Pasadena Convention Center 300 E Green St Pasadena, CA 9110

PD EDUCATION FROM HOME

MJ Fox Third Thursday webinar  

Thursday, February 15, 2018   TIME:  9 a.m. PT

TOPIC: Depression and Anxiety in Parkinson’s disease

We’re replaying a popular webinar on depression and anxiety. We’ll discuss the Parkinson’s symptoms of depression and anxiety, and how to treat and manage this aspect of life with the disease.

To register, go directly to: www.michaeljfox.org/page.html?hot-topics-webinar-series

PD Expert Briefing

Tuesday, February. 27,  2018   10 to 11 a.m.   

Topic: Parkinson’s Disease Psychosis: Hallucinations, Delusions and Paranoia. 

Host: Christopher G. Goetz, MD                                                     

Copy and paste into your internet server: http://parkinson.org/Living-with-Parkinsons/Resources-and-Support/PD-ExpertBriefings-Webinars Registration at their website.

What if I do not have access to a computer?

Yes, participants without computers may access both live and recorded PD ExpertBriefings. To access a live PD ExpertBriefing, on the day of the live event, dial (888) 272-8710 and input passcode 6323567# when prompted (this phone number is separate from the PDF HelpLine).


LSVT

DATE: Wednesday, February 21,2018                                                                        Time: 11:00 PM – 12 Noon  ( Pacific Standard Time)
TOPIC: How do you maintain the LOUD gains you made in LSVT LOUD treatment and stay motivated once treatment has concluded?

Join LSVT LOUD Faculty to hear valuable insights on post-discharge recommendations following LSVT LOUD, including continued daily homework practice, tune-up sessions and LOUD for LIFE® maintenance groups. Opportunities will be provided for you to ask questions during the webinar through voice and chat options.

In your internet server, copy, paste the following:

https://attendee.gotowebinar.com/register/1338814124016110850  in order to register.

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 PD Telephone at home:  Information unavailable at the present time.

January News and PD Support Group Listings

Image result for photo of new year 2018

Happy New Year from THE NEUROCOMMUNITY FOUNDATION!

The NeuroCommunity Foundation:

Phone: 818-745-5051

We hope everyone had a safe and peaceful holiday season.

May the coming year bring good health and happiness to all!

We also hope we can count on your donations to continue our efforts in providing YOU personalized Information and Resources, Education, Symposiums, Up-to-date Research & Clinical trials, Advocacy, Wellness and our PD Support groups! Donations accepted online or can be mailed to us.

At the HELPFUL INFORMATION tab, at our website,

you can read about MEDICARE CHANGES for 2018 and New Medicare cards

CLICK HERE:  January PD SUPPORT GROUP LISTINGS 

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Meet the January guest speakers by Clicking on their name !      

 Allison Smith  Parkinson’s in Balance ( Live Wires Burbank)      

Amy CarlsonEvery Victory Counts, Davis Phinney Foundation  (Santa Barbara)     

 Danica Tolentino CSUN Research- Gait Study  (Simi Valley)

 Dennis Cante Dance helps PD -Even the Tango!  (Claremont) 

 Holly Sacks  – Mindfullness for PD   (Sherman Oaks) 

 Wayne Pickerell – Clinical Research and Trials  in PD  (Ventura)

Karol Ann Sample – Assisted Home Health & Hospice What and Who is Hospice?  Everything you need to know. (Camarillo)     

 

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PD Education Events —  Pasadena – Advances in DBS    January 9                         Free Lecture

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New articles on our website: 

–Sugar and the Brain,

–MS Research progress in 2017,

–Autoimmunity and PD ,

–Caregiver Reminders  for 2018,

–Free Caregiver workshops in Glendale,

–Medicare changes in 2018 and Be Inspired- new thoughts for 2018! 

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Breaking News: CSUN  Clinical Research  GAIT and PD  Sign up to participate in this  study.

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PD   Educational Webinars

-Freezing or Sweating Falls When Walking with Parkinson’s Disease 

Additional educational webinar information was not available at this time. Please check back later.

MAILING ADDRESS:

The NeuroCommunity Foundation  

32705 Vanowen St.  # 216  

West Hills, CA  91307

TELEPHONE: (818.745.5051)

 

San Fernando Valley Caregivers Only Parkinson Support Group

caregiver group

The San Fernando Valley Caregivers Only Parkinson Support Group fosters a comfortable setting for sharing information, insight, advice and encouragement. The meetings provide an opportunity to learn from others who face the same challenges, and allow you to talk about your experiences. You’ll gain insight to new approaches of caregiving, including ones that worked for others in a similar situation. You can also gain perspective and learn caregiver stress management tools that come from hearing others talk about their experiences. [Read more…]

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

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Northridge Foundation For Neurological Research & Education

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Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process