Caffeine and Parkinson disease

caffeein

STUDY SHOWS POTENTIAL BENEFIT FOR CAFFEINE in PD

A new clinical study published in the journal Parkinsonism and Related Disorders links higher caffeine consumption to slower development of Parkinson’s symptoms after diagnosis.

Following the progression of Parkinson’s, researchers studied the progression of Parkinson’s symptoms over 4 years in 79 people who had been newly diagnosed with the condition.

[Read more…]

Prescription assistance new resources

HELPFUL RESOURCES

Partnership for Prescription Assistance  www.pparx.org

Works to increase awareness of and enrollment in patient assistance programs. Sponsors a toll-free helpline and serves as a single point of access to nearly 500 prescription assistance programs.

RX HOPE
www.rxhope.com

RxHope is exactly what its name implies…a helping hand to people in need in obtaining critical medications that they would normally have trouble affording. We act as your advocate in making the patient assistance program journey easier and faster by supplying vital information and help

BENEFITS CHECK-UP ( Social Security Administration)  www.benefitscheckup.org    and      www.ssa.gov

PLLUS Exercise Program       www.PLLUS.org

Geriatric Care Managers        www.aginglifecare.org

Disability Resources               www.disabilityresources.org

Description: Non-profit organization that works to promote and improve awareness, availability, and accessibility of information to help people with disabilities live, learn, work, and play independently. Disseminates information through a newsletter, a guide to toll-free telephone resources, a website, and other tools.

*** As a subscriber, if you come across other valuable resources you think others could benefit from or be interested in, could you please let us know through the following link:  contact us  Thank you so much.

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley contact us here or call 818-885-8623 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

PD Friendly Gardening

 

PD-Friendly Gardening  is a favorite summertime activity .Gardening is an enjoyable hobby but one which requires a good bit of planning if it is to be Parkinson’s-friendly. Here are many tips to make gardening as simple as possible for a person with PD. Picking your plants before you start digging and  spend some time thinking about what you would like to plant.

If you are partial to flowers, you may want to plant high-stemmed varieties so that you can sniff and cut them without bending to the ground. If vegetables are your interest, try to avoid selections that have to be dug up and that require kneeling, such as potatoes and carrots.

Separate the rows by at least 18 inches, so that you can tend to your crops without stumbling over them or falling. Remember that vegetables need frequent and abundant watering. Since standing for an extended period of time requires considerable stamina, it is advisable to purchase a soaker hose.

Place the hose alongside your walking path to avoid tripping, and wear waterproof footwear to keep your feet from getting wet and cramping. t at  If you don’t have the space or inclination to grow things outdoors, a window box of flowers or herbs may be a good choice. 

While you probably want to get started, there are a few things you should be thinking about before you break ground. When purchasing clippers and bulb planters, look for long-handled versions (two to three feet). These provide you with more control and eliminate the need to use a potentially-dangerous ladder.

Visit a local garden shop for a selection of long-handled tools, including One of your most important garden accessories is a pair of gloves that gives you a sturdy grip on tools while protecting your hands. To eliminate unnecessary trips to the tool shed, another useful accessory is the tool belt or apron. A mobile storage cart can fulfill the same function. A  mobile storage cart also provides a place to sit when you need a break.

One option is the Garden Scooter. A scooter doubles as a work seat and a storage space for tools. Try large big box discount stores or garden shop.  If you opt not to go with the cart, be sure to wear knee pads or use some other sort of cushioning to protect your knees when kneeling.

Keep your medications in mind. Knowing when your medications are most effective and when you might expect an “off” period can help you select the best time to garden. Be sure to create an outdoor, protected set-up of your medications, sorted in an easily-opened pillbox.

Wear a watch with a reminder device to alert you when it’s time to take your medications, and have plenty of water available, since many PD meds can cause dehydration. Sometimes, our PD meds can cause sensitivity to sunlight.

To avoid too much sun exposure, wear a wide-brimmed hat to protect your face, apply sunscreen and avoid going out during the hot hours of the day. Some people wear blue tinted sunglasses to cut down on the sun’s glard. Safety first!

Now that you are ready to start gardening, here are a few last-minute tips to keep you safe. First, leave a note telling the people you live with that you are outside. In case of an emergency, keep a well-charged portable or cell phone with you. To prevent rigidity, stretch before beginning your tasks. This, along with frequent changing of positions, can ward off stiffness. Implementing these tips will create the most pleasant environment in which to enjoy the fruits of your labor!

ADAPTED FROM THE Parkinson’s Mailbag, The Parkinson Disease Foundation

The PD Alphabet

Alphabet

Do you know the PD alphabet? A is for alpha-synuclein, B is for biomarker, C is for clinical trials … The Michael J. Fox Foundation has published a handy glossary to help you understand definitions of commonly used terms for symptoms, treatments and Parkinson’s research. You can [Read more…]

New Tool For PD Diagnosis

Movement Disorder Specialist Ronald B. Postuma, MD, MSc

Movement Disorder Specialist Ronald B. Postuma, MD, MSc

McGill University Health Centre in Canada published this article about a new tool for PD diagnosis on November 13, 2015:

A group of experts working under the umbrella of the International Parkinson and Movement Disorder Society (MDS), have developed a new tool for healthcare professionals that they hope will mark a significant advancement in the diagnosis and treatment of Parkinson’s disease, especially in its early stages. The results of their study, published in the journal Movement Disorders, could also have a major impact on the quality of research on Parkinson’s disease. [Read more…]

Unlocking Parkinson Disease

jon palfreman

Thanks to Alan for sharing the link to Unlocking Parkinson Disease, a Science Friday broadcast featuring Jon Palfreman, author of “Brain Storms: The Race to Unlock the Mysteries of Parkinson’s Disease.” In 1982, science journalist Jon Palfreman investigated a group of drug addicts who were struck with Parkinson’s-like symptoms after taking tainted heroin and documented his findings in a 1985 report. Thirty years later, Palfreman was diagnosed with Parkinson’s disease. In his book Brain Storms, he describes having Parkinson’s as “going on vacation in another country and having to drive on the ‘wrong’ side of the road.” Palfreman describes his own journey with the disease and discusses new treatments for Parkinson’s patients. [Read more…]

First Live Deep Brain Stimulation Surgery On TV

DBS

Watch the first live deep brain stimulation surgery on TV on Sunday, October 25th on the National Geographic Channel and Nat Geo Mundo at 6 pm Pacific Time. Hosted by Bryant Gumbel, the two-hour event will take viewers inside an awake deep brain stimulation (DBS) surgery via handheld and robotic cameras in the operating room.  Neurosurgeon, scientist, and KTLA 5 Morning News contributor Dr. Rahul Jandial and neuroscientist and podcast host Cara Santa Maria will provide the commentary. [Read more…]

The Bright Side Of Parkinson’s

The Bright Side of Parkinson's - photo by Jon Han for The New York Times

The Bright Side of Parkinson’s – photo by Jon Han for The New York Times

The Bright Side of Parkinson’s is an article written by Professor Jon Palfreman who has PD. It appeared in The New York Times on February 21, 2015.

Jon Palfreman is a professor of broadcast journalism at the University of Oregon and the author of the forthcoming book “Brain Storms: The Race to Unlock the Mysteries of Parkinson’s Disease.” (available for pre-order on Amazon). [Read more…]

Liftware Spoon

Liftware Spoon

Liftware Spoon

Thanks to Rich Grenn for sharing information about the Liftware Spoon which uses stabilizing technology to actively detect and counteract your tremor. [Read more…]

The Importance Of Your Social Support Network

social-suport-network

Thanks to Virginia Janovsky, MN, MS, RN, Clinical Coordinator/Research Study Coordinator, Southwest Parkinson’s Disease Research, Education and Clinical Center, Veterans Affairs-Greater Los Angeles Healthcare System for sharing an article about the importance of your social support network from the Mayo Clinic newsletter. [Read more…]

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
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Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process