TBI research study in children at local medical center

Wanted for Brain Imaging Research

Research study for Children with Recent Traumatic Brain Injuries

UCLA Division of Child Psychiatry

Children with Traumatic Brain Injuries (TBI) frequently experience problems with various mental and cognitive functions in the months following an injury.

Most children show substantial recovery in these functions during
the course of the first year following a TBI.

This National Institutes of Health (NIH) funded UCLA study
examines the brain processes associated with recovery of cognitive functions, such as attention, learning,memory, and problem solving following a TBI in children and adolescents.

Eligible patients must be between 8 and 18 years old, speak English, have good vision without glasses (contacts are OK), and have experienced a moderate to severe TBI within approximately the last 2-4 months.

Participants will undergo the following procedures twice within the span of one year:
 Two brain imaging exams (MRI), lasting less than 1 hour each
 Behavioral assessments of learning, memory and problem-solving skills, lasting  approximately 3 hours

For more information, contact:
Leila Molina, MA
310-825-0443
lmolina@mednet.ucla.edu

Interested families and patients will be asked to participate in a brief phone interview designed to determine if a child or adolescent is eligible to participate. Participants may earn up to $300 by enrolling in the study and will receive free brain imaging exams (MRI) and a free neuropsychological evaluation with a clinical report to help with diagnostic clarification, treatment planning, and/or educational planning purposes. Reimbursements for travel expenses and lunch will also be arranged.

This study is being conducted by Robert Asarnow, PhD
48-240C UCLA Neuropsychiatric Institute

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

Research studies for TBI in Los Angeles

TBI RESEARCH

Are you sleepy during the day?  Have you had a brain injury?  Did you know there might be a connection between brain injury and feeling sleepy? A clinical research study is now enrolling people with a past brain injury who feel sleepy during the day.  For more information and to find out if you qualify for the study, click on the link below

Rehabilitation Research Center at SCVMC

Christina Weyer Jamora, Ph.D. is conducting a study in conjunction with Marin Brain Injury Network for persons with mild TBI.  For more information, please click on the link below:

Computerized Brain Exercises Study

Children with recent traumatic brain injuries are wanted for brain imaging research.  UCLA Division of Child Psychiatry is conducting a study that examines the brain processes associated with recovery of cognitive functions, such as attention, learning, memory, and problem solving following a TBI in children and adolescents.  For more information and eligibility requirements, please click on the links below:

UCLA TBI Flyer

 UCLA TBI Brochure

The NeuroCommunity Foundation is here for you:

For information about Parkinson’s disease and other movement disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles County, Ventura County, Central Coast & Central Valley, contact us here or call 818-745-5051 to speak with Jan D. Somers, Education Director, Parkinson & Movement Disorder Information Center, The NeuroCommunity Foundation.

The NeuroCommunity Foundation is a non-profit foundation. We provide support groups, educational conferences, resources, research updates/ clinical trials information and PD events in the SFV/Ventura/Central Coast/ Inland Empire.

 As we rely on donations to continue providing these services at no charge, if you would like to support our efforts, you can donate with ease and security at our website or mail us your gift. Please make sure and note our website as a bookmark in your computer. It is:  www.neurocommunity.org 

 The NeuroCommunity Foundation is exempt from Federal income tax under section 501(c)(3) of the Internal Revenue Code. Donors may deduct contributions to the foundation as provided in section 170 of the Internal Revenue Code.

 

 

 

 

 

 

 

 

 

 

 

 

 

Exercise and Activities in SFV to manage neurological symptoms

 

Exercise Routines And Activities To Manage Symptoms And Improve Quality Of Life

Live broadcast of Yoga for Parkinson’s with Renee Le Verrier, RYT

Pomona: Casa Colina Parkinson’s Disease Speech and Exercise Group

Azusa: Casa Colina Parkinson’s Disease Speech and Exercise Group

Pasadena: group and private fitness classes, cardio, Pilates, restorative yoga, Gyrotonic Expansion System®, and meditation with Leslie Frank, DPT (neurological program and multiple sclerosis program)

San Gabriel & San Fernando Valleys, Ventura County: fitness and targeted exercises for neurological disorders with Lori Michiel, NASM-CPT

Tarzana and Encino: aqua fitness with Deborah Goldberger (also private and semi-private instruction in your pool)

Encino: adult fitness classes including Tai Chi & Chi Qong at Balboa Sports Center, LA City Recreation and Parks

Northridge: therapeutic exercises on land and in the water at the Center of Achievement Through Adapted Physical Activity at California State University, Northridge (CSUN)

Northridge: Laughter Yoga with Shelley Bell, CLYL, CLYT

West Hills: art therapy with Alison Paolini

San Fernando Valley, Ventura County: Neurotherapeutic Yoga with Colleen Carroll, YT

San Fernando Valley, Ventura County: Nordic Walking with Carol H. Prata

Los Angeles, San Fernando Valley, Santa Barbara: therapeutic and intergenerational orchestra with MusicMendsMinds

Tarzana: Invertigo Dance Theatre is ready to bring its Dancing Through Parkinson’s

Westlake Village: weekly exercise class/Debbie Jew, coordinator
1st Friday of month – Exercise2nd Friday of month – Music Therapy with Debbie Sipos
3rd Friday of month – “Chair” yoga with Jamie Hampton4th Friday of month – Tai Chi with Nora Li

Ventura County: PD Fighters non-contact Rock Steady Boxing Method with Jennifer Parkinson

Ventura County: Laughter Wellness with Arlene Raisner, CLYL

Newbury Park: Anytime Fitness 24-hour gym great workout classes recommended by Judy C.

Camarillo: Mindfullness with Holly Sacks

Camarillo, Ventura: Art of Moving for PD and movement disorders with Camille Torgeson

Camarillo: Focus on Balance, Tai Chi for Rehabilitation, Tai Chi Sun, Aqua Exercise with Camille Torgeson

Ventura: Focus on Balance, Tai Chi for Rehabilitiation, Tai Chi Sun, Walking with Camille Torgeson

Santa Barbara: Move to Connect for PD with Leslie Sack and Ruth Wishengrad

 

Current Research and Funding for TBI

TBI RESEARCH and FUNDING NEWS 

Go to: https://www.ninds.nih.gov/News-Events/News-and-Press-Releases/press-releases/2017 to read about the following research being conducted or click on the title to take you there directly. OR  click on the colored words and that should take you directly to the article.

Gene silencing shows promise for treating two fatal neurological disorders

Wednesday, April 12, 2017

NIH-funded preclinical studies suggest designer drug may treat ALS and spinocerebellar ataxia 2

Study finds genetic basis for drug response in childhood absence epilepsy

Tuesday, April 11, 2017

NIH-funded research suggests genes may help determine optimal treatments…

Scientists discover urinary biomarker that may help track ALS

Wednesday, March 22, 2017

NIH-funded study suggests opportunity to find insights to neurological disease

NIH consortium takes aim at vascular disease-linked cognitive impairment and dementia

Wednesday, February 22, 2017

MarkVCID brings team science approach to small vessel disease biomarkers in the brain

International study suggests Nodding syndrome caused by response to parasitic protein

Wednesday, February 15, 2017

NIH-funded study also identifies potential new mechanism for some forms of epilepsy 

Epilepsy drug discovered in fish model shows promise in small pediatric clinical trial

Friday, February 10, 2017

NIH-funded research suggests zebrafish models may be efficient resource for identifying drugs for clinical use

Designer compound may untangle damage leading to some dementias

Wednesday, February 8, 2017

NIH-funded preclinical study suggests a possible treatment for Alzheimer’s disease and other neurodegenerative disorders

NINDS names Dr. Amir Tamiz as director of the Division of Translational Research

Tuesday, January 31, 2017

The NIH’s National Institute of Neurological Disorders and Stroke (NINDS) has announced the selection of Amir Tamiz, Ph.D., as the Institute’s director of the Division of Translational Research (DTR). As director, Dr.

NIH initiates pilot grant program for innovative neurological research

Thursday, January 26, 2017

Pilot award strategy designed to enhance funding stability to researchers

Support Groups for Patients and Families

inspriation august

SUPPORT GROUPS FOR TBI Patients and Families

To find the nearest Support Group in your area, go to

Copy and paste the following website, into your browser:

http://biacal.org/brain-injury-support-groups-california.htm

If you are having trouble, please contact us: The NeuroCommunity Foundation.

Click here: neurocommunity@gmail.com and it will take you directly to our gmail.

 

 

 

 

 

 

Participants needed for new research studies and clinical trials

Participants needed for new research studies and clinical trials

The NeuroCommunity Foundation, in conjunction with the research community, want to ensure you have the opportunity to participate in research studies to help others and yourself. Your participation can assist researchers find new methods to prevent, detect or treat many neurological diseases.The following is a list of available research studies now recruiting interested participants. It is a small portion of the effort and dedication the research community places for advances in treatments for diseases that affect us all.  The following studies include aging, Parkinson’s disease, Multiple Sclerosis, Stroke and Traumatic Brain Injury.

[Read more…]

Smart Socks Gait Monitoring System Research Study

smart socks

Participants needed for a new research study at Casa Colina Hospital and Centers for Healthcare in Pomona to evaluate Smart Socks Gait Monitoring System for improving rehabilitation outcomes. The Sensoria Smart Socks gait monitoring system is a pair of socks and anklet bands that provide real-time monitoring of gait. Falls and subsequent health issues related to challenges in gait (walking) can occur when individuals are recovering from a stroke or brain injury or are dealing with progressive neurological disorders such as Parkinson’s Disease (PD) or Multiple Sclerosis (MS). The goal of the research study is [Read more…]

TBI Awareness Day Symposium

Traumatic Brain Injury

On March 2nd, TBI Awareness Day, the UCLA Brain Injury Research Center (BIRC) is presenting a one day symposium reviewing Traumatic Brain Injury (TBI) from concussion to severe injury. The spectrum of TBI recovery will also be discussed. The speakers include David Hovda, PhD, Director, UCLA Brain Injury Research Center; Dr. Christopher Giza; and Dr. Paul Vespa. The event is open to everyone [Read more…]

Exercise Routines And Activities To Manage Symptoms And Improve Quality Of Life

exercise

Now is the best time to commit to an exercise routine to help manage your symptoms and improve your quality of life. Caregivers will find that exercise relieves stress and gets the feel-good hormones flowing.

Find a new activity you enjoy or challenge yourself in your current workout. The buddy system works great to keep you motivated and there are lots of apps and wearable technology to keep track of your progress. I am grateful to Cindy Marcus, [Read more…]

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

Support us when you shop for back-to-school items.

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Northridge Foundation For Neurological Research & Education

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Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process