House Passed the 21st Century Cures Act

US House of Representatives

On July 10, the House passed 21st Century Cures Act (H.R. 6), a bill to help modernize and personalize health care, encourage greater innovation, support research, and streamline the system.

Advances in research continue to occur at a fast pace but the process of moving these discoveries out of the lab and into the real world where they can benefit people is frustratingly slow. The 21st Century Cures Act is designed to speed the process from scientific discovery to health treatments and cures for people who need them.

House Passed the 21st Century Cures Act

What does it mean for you? The NeuroCommunity Foundation is especially encouraged by the inclusion of H.R. 292 – Advancing Research for Neurological Diseases Act of 2015 – as a provision of H.R. 6, the goal of which is to establish a data system to track the incidence and prevalence of neurological diseases, including movement disorders and multiple sclerosis.

This provision will help advance research by establishing a data systems to collect the size and makeup of the population diagnosed with neurological disorders. Currently, no one has an accurate account of how many people in the United States have Parkinson’s or MS, or the demographic characteristics of those living with the disease. As a result, researchers are working at a distinct disadvantage because they are operating without basic information. By establishing this data system, researchers will be supplied data that may point to new environmental triggers, which could lead to a better understanding of the disease and new disease targets.

What’s next for H.R. 6? On July 13 it was received in the Senate and referred to the Committee on Health, Education, Labor, and Pensions.

How can you help? We salute all the advocates who worked so hard and we ask all of you to contact your Senators about this important cause as well as thank your Representative for voting.

Update: In California, the Parkinson’s Registry (signed in 2004 by Gov. Schwarzenegger) has yet to be funded. Please contact us now if you would like to join the effort to keep the Registry alive. The Registry was designed to provide key demographic data in tracking the disease (similar to the California Cancer Registry) in order to identify the underlying causes and risk factors of Parkinson’s.

The NeuroCommunity Foundation is here for you:

For information about neurological disorders, support groups, wellness programs, education events, and local resources in northern Los Angeles county, Ventura county, Central Coast & Central Valley, contact us here or call 818-885-8623 to speak with Viviane Tondeur, Education Director, The NeuroCommunity Foundation.

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Shop with AmazonSmile and Support The NeuroCommunity Foundation

Did you know that you can support The NeuroCommunity Foundation through your everyday online purchases? Amazon.com has a charitable program called AmazonSmile. It is a simple and automatic way for you to support The NeuroCommunity Foundation every time you shop, at no cost to you.

When you shop at AmazonSmile, you’ll find the exact same low prices, vast selection and convenient shopping experience as Amazon.com, with the added bonus that the AmazonSmile Foundation will donate 0.5% of the purchase price to The NeuroCommunity Foundation!

It’s simple:

1) Go to AmazonSmile from the web browser on your computer or mobile device.
2)Login with your amazon.com username and password or create one if you are a new user.
3) Search for The NeuroCommunity Foundation in the search box on the right side where it asks which charity you would like to support.
4) Select The NeuroCommunity Foundation from the search results or type in The NeuroCommunity Foundation should the select not include our organization.
Happy shopping and thank you for supporting The NeuroCommunity Foundation

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Dear The NeuroCommunity Foundation friends,supporters and participants.

If you happen to shop at Ralphs and would like to support The NeuroCommunity Foundation, we would be most appreciative!. If you do shop at Ralphs, we will receive 1 % of your purchase through their community
contribution program. The NeuroCommunity Foundation's Non-Profit Org. number ( NP0 # ) is 82287

All you need to do is enroll online at www.ralphs.com OR by calling Ralphs at
800-443-4438 after September 1, 2016.

If you happened to enroll prior to Sept 1st, Ralphs requires you to register again.

For your convenience, step-by-step website registration instructions are found below or can be found at www.ralphs.com, click on Community, click on Community Contributions, click on ‘Enroll Now’. If you don’t have computer access, please call us at 1-800-443-4438 for assistance.

Use you Ralph’s Rewards Card to Contribute Here’s How:

If you do not have a Ralph’s online account
1. Go to www.ralphs.com/account/create
2. Follow the easy steps to create an online account
3. You will be instructed to go to your email inbox to confirm your account
4. After you confirm your online account by clicking on the link in your email, return to
www.ralphs.com and click on ‘Sign In’, enter your email address and password.
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Enroll
b. Type our NPO number 82287 or Neurocommunity.org
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process

IF YOU HAVE ALREADY REGISTERED YOUR REWARDS CARD ON-LINE
(This means that you have already entered your email address and assigned yourself a password)

1. Log in to www.ralphs.com
2. Click Sign In
3. Enter your email address and password
4. Click on ‘Your Name’ (In the top right hand corner)
5. View all your information and edit as necessary
6. Link your card to your organization by clicking on:
a. Community Rewards – Re-Enroll
b. Type your NPO number or Name of your Organization
c. Remember to click on the circle to the left of your organizations’ name
d. Click on Enroll to finish your enrollment process